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Publication
Scrutinizing the right not to know
Am J BioethClinical Sequencing Evidence-Generating Research (CSER) Consortium -
Publication
Challenges and opportunities for developing more generalizable polygenic risk scores
Annual Review of Biomedical Data Science -
Publication
Journey into genes: Cultural values and the (near) future of genetic counselling in mental health
Springer, Cham. -
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Publication
Recontacting in medical genetics: The implications of a broadening knowledge base
Human Genetics -
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Reconceptualizing autonomy for bioethics: Genomics highlights the beed for normative competence
Kennedy Institute of Ethics Journal -
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Additional Resource
Consensus Study Report, Opportunities for Organ Donor Intervention Research: Saving Lives by Improving the Quality and Quantity of Organs for Transplantation, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2017)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on the ethical, legal, regulatory, policy, and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding