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Publication

Duty to recontact in genomic cancer care: A tool helping to assess the professional's responsibility

European Journal of Cancer
Martine C. Ploem, Noor A. A. Giesbertz, Annelien L. Bredenoord, Valesca P. Retèl, Wim H. van Harten

Publication

Ethics in pre-ART genetics: A missed X-linked Menkes disease case

Journal of Assisted Reproduction and Genetics
A-M. A. Gerdes, L. Birk Møller, N. Horn

Publication

Rare disease, advocacy and justice: Intersecting disparities in research and clinical care

American Journal of Bioethics
Meghan C. Halley, Colin M. E. Halverson, Holly K. Tabor, Aaron J. Goldenberg

Publication

Bounded justice, inclusion, and the hyper/invisibility of race in precision medicine

American Journal of Bioethics
Kadija Ferryman

Publication

Human Genetics Society of Australasia position statement: Genetic testing and personal insurance products in Australia

Twin Research and Human Genetics
Ainsley J. Newson, Sam Ayres, Jackie Boyle, Michael T. Gabbett, Amy Nisselle

Publication

Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?"

Journal of Genetic Counseling
Beth Lincoln-Boyea, Rebecca R. Moultrie, Barbara B. Biesecker, Marcia Underwood, Martin Duparc, Anne C. Wheeler , Holly L. Peay

Publication

Human Genetics Society of Australasia position statement: Genetic carrier testing for recessive conditions

Twin Research and Human Genetics
Danya F. Vears, Jackie Boyle, Chris Jacobs, Aideen McInerney-Leo, Ainsley J. Newson, Education, Ethics and Social Issues Committee of the Human Genetics Society of Australasia

Publication

Preconception expanded carrier screening: A discourse analysis of Dutch webpages

Healthcare (Basel)
Sofia Morberg Jämterud, Anke Snoek

Publication

Rapid genomic testing in intensive care: Health professionals' perspectives on ethical challenges

Children (Basel)
Katie Arkell, Christopher Gyngell, Zornitza Stark, Danya F. Vears