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Grant Abstract
Research, Treatment and Informed Consent in Gene Therapy
This project is designed to analyze the adequacy of the Belmont Report's distinction between research and treatment as a basis for informed consent policy especially as it pertains to gene…- behavioral /social science research tag
- Clinical Research
- Decision Making
- gene therapy
- health care policy
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Grant Abstract
Consumer Perspectives on the Promise of CF Gene Therapy
In this study, the Education Development Center, Inc., in collaboration with the International Association of Cystic Fibrosis Adults (IACFA), Temple University, St. Vincent's Hospital, and…- Attitude
- behavioral /social science research tag
- Belief
- Clinical Research
- Cystic Fibrosis
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Grant Abstract
Human Subjects Protections in Prenatal Gene Transfer Research
This project explores whether the current regulations for protecting research subjects will provide adequate protections and guidance for future research involving human prenatal gene therapy. It…- Awareness
- base
- Benefits and Risks
- Child
- design
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Grant Abstract
Cost-effectiveness of Whole Genome Sequencing of Healthy Adults
Whole genome sequencing has vast potential to improve the care of generally healthy adults by identifying predispositions for disease to facilitate targeted prevention and screening efforts, by…- Adult
- Area
- base
- behavioral response
- Benign
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Grant Abstract
Cost-effectiveness of Whole Genome Sequencing of Healthy Adults
PROJECT NARRATIVE The central goal of the proposed research is to determine the cost-effectiveness of integrating whole genome sequencing into the care of healthy adults. We will assess the health…- Address
- Adult
- Area
- base
- behavioral response
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Grant Abstract
Effects of Gene Patents on Genetic Testing And Research
This project will use case studies and a survey, combining qualitative and quantitative approaches, to describe and analyze the effects of a particular class of patents (those that claim DNA…- biotechnology
- cooperative study
- diagnosis design /evaluation
- gene therapy
- Genetic Screening
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Grant Abstract
Returning genetic research panel results for breast cancer susceptibility
Genetic screening for cancer susceptibility (e.g. BRCA1/2) has become a standard evidence-based practice in cancer prevention and has proven to reduce breast cancer morbidity and mortality. Yet, most…- American Society of Clinical Oncology
- anticancer research
- Award
- behavioral outcome
- Benefits and Risks
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Grant Abstract
Social Construction of Benefit in Gene Transfer Research
The purpose of this study is to determine how the prospect of direct benefit to research subjects in gene transfer research (GTR) (usually called 'gene therapy') is understood and discussed…- behavioral /social science research tag
- Comprehension
- Ethics
- gene therapy
- Health behavior
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Grant Abstract
Breast Cancer Gene Education--Computer vs Practitioner
The objective of the proposed study is to determine whether computer-based education is as effective as practitioner-based education for increasing understanding of genetic testing for breast cancer…- breast neoplasms
- cancer risk
- Clinical Trials
- computer assisted instruction
- education evaluation /planning
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Grant Abstract
Gene Tests for Colon Cancer Risk: Psychosocial Studies (II)
The main goal of this proposal is to develop appropriate comprehensive counseling guidelines for predictive colon cancer gene testing by assessing perceptions and attitudes toward the gene tests,…- African American
- behavioral /social science research tag
- cancer prevention
- cancer risk
- caucasian American