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Publication
Gene therapy may not be as expensive as people think: Challenges in assessing the value of single and short-term therapies
Journal of Managed Care and Specialty Pharmacy -
Publication
Gene therapy for neuromuscular diseases: Health economic challenges and future perspectives
Journal of Neuromuscular Diseases -
Publication
Trials and tribulations: The cost of developing gene therapies
FASEB (Federation of American Societies of Experimental Biology)Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Patient and public perspectives on cell and gene therapies: A systematic review
Nature Communications -
Publication
Germ-line gene therapy: The costs of premature ultimates
Politics and The Life SciencesDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease
ELSI Friday Forum • June 11, 2021 Pilar Ossorio, JD, PhD, moderates this session with panelists Liza-Marie Johnson, MD, MPH, MSB, and Melissa Creary, PhD, MPH, describing the…- sickle cell disease
- Gene Therapy / Gene Transfer
- Genetic Intervention
- Gene Transfer
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Publication
HTA methodology and value frameworks for evaluation and policy making for cell and gene therapies
The European Journal of Health Economics -
Video
ELSIcon2022 Paper: Democratizing Knowledge for Sickle Cell Disease Gene Therapy: A Deliberative Stakeholder Engagement Approach
ELSIcon2022 • Paper • June 3, 2022 Kiana Amini, Vence Bonham The advent of genetic therapy technologies implicates both tremendous therapeutic promise and potential risk. Sickle cell disease…- Live
- Paper
- Gene therapy and gene editing
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Publication
Are we prepared to deliver gene-targeted therapies for rare diseases?
American Journal of Medical Genetics Part C: Seminars in Medical Genetics