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Publication
Models of Data Governance and Advancing Indigenous Genomic Data Sovereignty
Knowledge Discovery and Data Mining -
Publication
Entwined processes: Rescripting consent and strengthening governance in genomics research with indigenous communities
Journal of Law, Medicine & Ethics -
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Collection
Biocolonialism and Other “Western”-Centered Bioethical Failures Onto Indigenous Peoples
There are complex, historical reasons why global Indigenous peoples have largely not engaged in genetics and genomics research. For example, if we look to the 1990s and early 2000s, global Indigenous…- Indigenous
- genetic data
- genetic ancestry
- decolonization
- Indigenous data
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Publication
Exploring the barriers preventing Indigenous Australians from accessing cancer genetic counseling
Journal of Genetic Counseling -
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Publication
Fostering ethical, legal, and social implications research in tribal communities: The Center for the Ethics of Indigenous Genomic Research
Journal of Empirical Research on Human Research Ethics -
Publication
Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data
CellMackey and colleagues describe how Indigenous data sovereignty (IDS) principles could be operationalized with blockchain technology. -