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Publication
Motivators for participation in a whole-genome sequencing study: Implications for translational genomics research
European Journal of Human Genetics -
Publication
Parents’ online portrayals of pediatric treatment and research options
Journal of Empirical Research on Human Research Ethics -
Publication
Expanded newborn screening for biochemical disorders: The effect of a false-positive result
Pediatrics -
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Publication
Reasons for declining preconception expanded carrier screening using genome sequencing
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): UM1HG007292, U01HG007307 -
Publication
Referencing BRCA in hereditary cancer risk discussions: In search of an anchor in a sea of uncertainty
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006487, 2P50HG004488, R00HG008819 -
Video
ELSIcon2022 Paper: In the Shadows of Virtual Family Trees
ELSIcon2022 • Paper • May 27, 2022 Amy McGuire, André Brock, Katrina Ellis, Lynette Hammond Gerido Technology is changing the ways in which we relate to each other, create knowledge, and share…- Data and data stewardship
- Education and public reception of genetic science
- Paper
- Pre-Recorded
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Publication
Perspectives of US private payers on insurance coverage for pediatric and prenatal exome sequencing: Results of a study from the Program in Prenatal and Pediatric Genomic Sequencing (P3EGS)
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG009599, R01 CA221870