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Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty
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Publication
Being in good community: Engagement in support of Indigenous sovereignty
American Journal of Bioethics -
Publication
Ethical issues in developing pharmacogenetic research partnerships with American Indigenous communities
Clinical Pharmacology and Therapeutics -
Publication
Fostering ethical, legal, and social implications research in tribal communities: The Center for the Ethics of Indigenous Genomic Research
Journal of Empirical Research on Human Research Ethics -
Publication
Culturally appropriate consent processes for community-driven indigenous child health research: A scoping review
BMC Medical Ethics -
Video
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…- Indigenous Communities
- Alaska Native/American Indian Health Research
- genomic data sharing policy
- data sovereignty
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Collection
Realizing the Self-Determination Goals of Indigenous People in Genetics Research
Self-determination and tribal sovereignty are core concepts in the lives and histories of Indigenous Peoples. Within the United States, the peoples of the American Indian and Alaska Native tribes are…- Indigenous Peoples
- Genetics Research
- data sovereignty
- Indigenous Communities
- Community Engagement
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Publication
Indigenous genomic databases: Pragmatic considerations and cultural contexts
Frontiers in Public Health -
Publication
Lessons learned in genetic research with Indigenous Australian participants
Medical Journal of Australia -
Publication
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Nature Reviews Genetics