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Grant Abstract
Clinical and genetic studies of hereditary neurological disorders in Mali
Despite the vast diversity of its populations, genetic studies in Africa have been limited. African populations, Malians in particular, have a high rate of intra-ethnic and consanguineous marriage,…- Affect
- Africa
- Africa South of the Sahara
- African
- Award
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Grant Abstract
Ethics of Dissemination: Communicating with Participants about Genetics Research
Biomedical research involving humans generates results that fall on a continuum of potential interest to participants. Some results, such as blood pressure, have obvious clinical utility, and…- Alaska
- Alaska Native
- arm
- base
- Behavioral Genetics
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Publication
Disability education and implications for genetic counselor training
Journal of Genetic Counseling -
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Grant Abstract
Informed Consent & Concepts of Race in Genetic Research
To advance understanding of the ethical dimensions of genetic research for diverse populations this project will address questions that take into account concerns of the individual, scientific…- African
- African American
- behavioral /social science research tag
- breast neoplasms
- culture
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Collection
Establishing Gender-Affirming Genetic Counseling Services
Transgender (trans) describes an individual whose gender identity differs from the sex they were assigned at birth. In the U.S., approximately 2.6 million people (~1% of the population) identify as…- TGDI
- gender affirming care
- intersex
- transgender
- gender-diverse
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Publication
Ask the people: Developing guidelines for genomic research with Aboriginal and Torres Strait Islander peoples
BMJ Glob Health -
Publication
Rules of engagement: Perspectives on stakeholder engagement for genomic biobanking research in South Africa
BMC Medical Ethics -
News
ELSI in Review • February 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2024 set explores ethical considerations for… -
Event
National DNA Day 2024
The National Human Genome Research Institute (NHGRI) is a leader in the celebration of National DNA Day. Since 2003, National DNA Day has brought students, educators and the general public together…