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How Literature and Film Shape and Reflect Public Attitudes toward Genetics
Powerful works of art enrich our understanding of the issues that matter most in our lives—not least in controversial areas of the biosciences. By exploring the dense cultural networks that shape…- Narratives
- Film
- Literature
- public attitudes
- race and genetics
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Race, Genetics, and Genetics Education
The completion of the Human Genome Project in 2003 opened up the floodgates of genetic data, ushering in rapid technological and scientific change. Today, the decreasing costs of genome sequencing…- race and genetics
- genetic education
- Racial essentialism
- Prejudice
- Racial conceptualization
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Who Are We Now? Genetics, Genomics, and the Question of the Human
“We used to think our fate was in the stars,” quipped James Watson in a Time magazine piece announcing the Human Genome Project (HGP). “Now we know, in large measure, our fate is in our genes.”…- Epigenetics
- genetic identity
- bias
- Justice
- genetic information
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Genetics Toolkit: Preventing Misuse of Genetic Science
The misuse and distortion of genetic science by white supremacists during the 20th century made genetic essentialism, the belief that genes can accurately predict complex behaviors and traits, a…- genetic essentialism
- Behavioral Genetics
- Scientists’ responsibility
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Game of Bones: Power, Ethics, and Emerging Technology in Paleogenomics Research
The field of paleogenomics is exploding. More ancient genomes were sequenced in 2019 than in all of history. According to The Economist, in 2018, oil was the most traded global commodity. However, in…- paleogenomics
- ancient DNA
- emerging technology
- Indigenous Peoples
- archaeology
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How Do We Diversify Human Genomics Research?
The lack of diversity in human genomics research and reference datasets is a known problem, with real-life consequences, but the path forward remains elusive. Solutions to the problem of sampling…- genetic diversity
- Admixture
- anti-racism
- FAIR data principles
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Dataveillance and Human Rights
Nearly 75 years ago, countries agreed to an International Bill of Human Rights, that included, among other fundamental rights, a right to privacy, a right to science, and a right to health. Cohesive…- data privacy
- data justice
- public health surveillance
- HIPAA
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Empirical Evaluation of Arts-Based Informational Aids for ELSI Issues in the Clinic and Beyond
The rapidly changing science of clinical genetics and the complexity of its associated ethical, legal, and social (ELSI) issues call for novel approaches to information delivery and education of…- Genetics education
- popular culture
- science education
- Arts
- Informational aids
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The Disability Rights Critique of Technologies that Eliminate Human Genetic Variation
The development and use of an expanding range of medical technologies that yield genetic information about embryos and fetuses has raised ethical questions about whether and how this increasingly… -
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Technologies to Operationalize Indigenous Data Sovereignty
Throughout history, data about Indigenous communities, cultures, and territories have been collected and collated through research and surveillance as part of processes of colonisation and…- Indigenous data
- Indigenous Communities
- Big Data
- decolonization