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Video
Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies
ELSI Friday Forum • February 11, 2022 As long as genetics research has been pursued, authors within and outside of the scientific establishment have crafted narratives to make sense of…- Humanities
- Post-genomics
- Literature and genetics
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Video
ELSIcon2022 Flash: Latina women’s knowledge of, preferences for, and experiences with prenatal genetic testing: A scoping review
ELSIcon2022 • Flash • May 27, 2022 Natalie Grafft, Maria Pineros Leano, Andrew Dwyer Background: The American College of Obstetricians and Gynecologists recommends prenatal genetic testing (PGT) be…- Uptake of genetic testing
- Genetic testing and screening
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Panel: Privacy, Agency, and Relationships in the Genomic Era: Views from the Public
ELSIcon2022 • Panel • May 27, 2022 Ellen Clayton, Sarah Hagaman, Ayden Eilmus, Zhijun Yin This panel highlights the transdisciplinary approach our Center for Genetic Privacy and Identity in…- genetic identity
- Genetic testing and screening
- Panel
- Pre-Recorded
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Video
Ethical Frameworks for Research Collaboration with Indigenous Communities
Research with Alaska Native and American Indian people has a complex history. American Indian and Alaska Native peoples, are both a racial classification and less known to most Americans, a political… -
Video
ELSIcon2022 Late-Breaking: Is a gene running in your family? Perceptions of responsibility to inform relatives about genetic cancer predisposition and risk management: an in-depth qualitative Swiss-Korean comparative analysis
ELSIcon2022 • Networking Session • Late-breaking Abstracts • May 31, 2022 Monica Aceti This study examines the different meanings of responsibility to disclose to family about genetic…- Live
- Networking Session
- Late-breaking Abstracts
- Disclosure of genetic risk information to relatives
- Genetic Counseling
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Video
ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
Racial and Ethnic Classification in the Clinic: Is it Just?
Natalie Pino, BA - National Human Genome Research Institute ELSIconversations - March 26, 2021 The United States has a long history of institutionally classifying people by racial and ethnic (R/E)…- racial /ethnic difference
- race and genetics
- clinical challenges
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Video
ELSIconversations - Pharmacogenomic Testing (PGx) in Psychiatric Care: Exploring Ethical and Regulatory Frontiers, Session 1
Session title: An Overview of Pharmacogenomic Testing (PGx) from an ELSI, Psychology, and Psychiatry Perspective Duke Margolis Institute for Health Policy and CERA Collaboration This…- Mental Health
- PGx
- pharmacogenomics
- Psychology
- Psychiatry
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Video
A Qualitative Study to Develop a Privacy and Nondiscrimination Best Practice Framework for Personalized Wellness Programs
Rachele Hendricks-Sturrup, DHSc, MSc, MA - Harvard Pilgrim Health Care Institute and Harvard Medical School ELSIconversations - February 26, 2021 Employers are increasingly partnering with direct-…- Direct to Consumer Genetic Testing
- direct to consumer marketing
- Wellness programs
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Video
ELSIcon2022 Paper: Embryoids: What are they, should we be concerned, should they be regulated, and if so, how?
ELSIcon2022 • Paper • June 3, 2022 Ana Iltis, Kirstin Matthews Researchers have made significant strides toward studying human embryogenesis by culturing human embryos longer and creating…- Live
- Paper
- Emerging technologies - public opinion and policy
- Gene therapy and gene editing