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News
LawSeqSM: Confronting the Legal Barriers to Genomic Medicine
On December 2, 2020 national experts convened for a Zoom webinar on “LawSeqSM: Facing the Legal Barriers to Genomic Research & Precision Medicine.” This event grew out of a project funded by the…- GENETIC engineering laws
- LawSeq
- Statutes and Laws
- genetic privacy law
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News
Navigating Consumer Protections for Genomics and Precision Health: An Interview with Jennifer K. Wagner and Abdulai I. Rashid
Despite their increasingly critical importance, consumer protections available from the Federal Trade Commission (FTC) and state Attorneys General related to the direct-to-consumer genomics and… -
News
All of Us Research Program Releases Tribal Consultation Final Report
NIH to enhance tribal engagement efforts for precision medicine research: Tribal leaders inform All of Us Research Program’s next steps to include tribal communities PRESS RELEASE…- Tribal Sovereignty
- indigenous community
- Data Governance
- Alaska Native/American Indian Health Research
- Best practices for clinical and research ethics consultation
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News
Genomics in Society: New Developments, New Questions: Discussions with Journalists
SERIES INFORMATION Journalists, journalism students, journalism educators and all interested parties: please join us on for a series of discussions on "Genomics in Society: New Developments, New…- ELSI
- Journalism
- Sociogenomics
- Behavioral genomics
- forensic DNA
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News
Informed Consent in Genomic Medicine – Strengthening Assessment, Ethical Resilience, Practice
The GE2P2 Global Foundation – a 2016 spin-off from the Division of Medical Ethics, NYU School of Medicine – has launched a multi-year initiative to assess and materially strengthen informed consent…- genome informed consent
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News
ELSI in Review • November 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2023 set explores the ethics of risk prediction… -
News
ELSIcon2020 ELSIconversations
ELSIcon2020 ELSIconversations focused on presentations that were originally accepted for the canceled 2020 ELSI Congress. The 21 participants recorded 15-minute presentations of their… -
News
ELSI in Review • November 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2022 set explores ethical considerations in… -
News
ELSI in Action: Eight Presentations from the ELSI Virtual Forum
The ELSI Virtual Forum, held online in June 2020, presented eight of the talks planned for the 2020 ELSI Congress, sadly canceled due to the pandemic. The recorded presentations are now… -
News
ELSIconversations ELSIcon2022 Series
This series included selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors briefly recapped their…