Members of the ELSI Scholar Directory are scholars and trainees with an interest in research on the ethical, legal, and social implications of genetics and genomics. You may contact members to organize collaborative projects or working groups, share speaking opportunities, solicit expert commentary, obtain advice on policy or legislation, network, and arrange mentor/mentee relationships.
1 - 10 of 24 Scholars
Join Directory-
Emily S Bonkowski, ScM
Genetic counselor/PhD student
Institution: St. Jude Children's Research Hospital/Univ of Washington
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Pediatric bioethics
- Ethics of precision medicine
- Rare Diseases
- Population screening and public health genomics
- Pediatric Neurology
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Julie Cakici, BA, BSN
Graduate Student Researcher
Institution: University of California, San Diego and San Diego State University
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Consent for Genomic Testing
- Infant, Newborn
- Pediatric bioethics
- ELSI Genomics
- Ethical and organizational issues in biobanking
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R. Alta Charo, JD
Professor Emerita of Law & Bioethics, and Independent Consultant
Institution: University of Wisconsin, and Alta Charo Consulting, LLC
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Bioethics Consultants
- gene/genome editing
- Stem Cell Research
- Assisted Reproductive Technology
- animal genetic modification
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Megan Doerr, MS, LGC
Director, Applied ELSI Research
Institution: Sage Bionetworks
Contact: [email protected]
AREAS OF EXPERTISE
Show more- ELSI Issues in Large-scale Population Cohort Studies
- Open science
- Informed Consent
- participatory research
- algorithmic harms
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Andrew A. Dwyer, PhD, FNP-BC, FNAP, FAAN
Associate Professor
Institution: Boston College William F. Connell School of Nursing
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Genomic nursing
- Rare Diseases
- Decision making
- Reproductive endocrinology
- Person-centered care
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Ingrid A Holm, MD. MPH
Professor of Pediatrics
Institution: Boston Children's Hospital
Contact: [email protected]
AREAS OF EXPERTISE
Show more- individual research results
- genetic disorder diagnosis
- health disparities
- Newborn Sequencing
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Rosario Isasi, J.D., M.P.H
Research Associate Professor of Human Genetics
Institution: Dpt. of Human Genetics University of Miami Miller School of Medicine
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Genetics and the Law
- Bioethics
- Master of Public Health
- comparative analysis
- ethnic minority population
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Sara H. Katsanis, M.S.
Research Assistant Professor
Institution: Northwestern University, Lurie Children's Hospital
Contact: [email protected]
AREAS OF EXPERTISE
Show more- DNA
- Genetic Testing
- Genomic Information
- Ethical Legal and Social Implications (ELSI)
- forensic DNA
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Madison K. Kilbride, Ph.D.
Instructor in Medical Ethics and Health Policy
Institution: University of Pennsylvania
Contact: [email protected]
AREAS OF EXPERTISE
Show more- Philosophy
- Bioethics
- Ethical Legal and Social Implications (ELSI)
- Direct to Consumer Genetic Testing
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Helen J. Kim, MA, MS, CGC
Genetic Counselor & Public Engagement Associate
Institution: pgEd at Harvard Medical School
Contact: [email protected]
AREAS OF EXPERTISE
Show more- race and genetics
- cancer genetics
- disability and reproductive rights
- Genetic Testing
- Access to genetic screening and therapies