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New Publications
Dobbs and the future of health data privacy for patients and healthcare organizations
Clayton, Embí, and Malin describe how state laws that limit or ban abortion may result in new threats to health information security and outline policy options.
Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data
Mackey and colleagues describe how Indigenous data sovereignty (IDS) principles could be operationalized with blockchain technology.
Should health systems share genetic findings with at-risk relatives when the proband is deceased? Interviews with individuals diagnosed with Lynch syndrome
The consensus among the participants interviewed by Hunter and colleagues was that health systems should inform relatives of genetic findings following a patient’s death; should deliver them a few months after, but within a year; and have a knowledgeable professional share the information.