ELSI-focused databases and summarized
scholarship to do more, faster.
Resources
Visit the research tools database to download tools, review tool validations, and contact authors for consultation.
Browse our growing multidisciplinary collection of ELSI scholarship including: books, articles, videos, websites, and more.
Policy Resources from academic centers, professional organizations, and the NIH.
Find out where ELSI researchers publish, access key bioethics websites, review state bills and laws related to genomics, visit the Centers for Excellence in ELSI Research, and more.
New Publications
“It seems like COVID-19 now is the only disease present on Earth”: Living with a rare or undiagnosed disease during the COVID-19 pandemic
Halley and colleagues call for urgent action and attention to the serious challenges posed by the COVID-19 pandemic for people with rare or undiagnosed diseases.
Human brain surrogates research: The onrushing ethical dilemma
Greely outlines ethical and legal issues related to the creation of proxies for living human brains that could merit the same consideration as living humans.
Assessment of the All of Us research program's informed consent process
Doerr and colleagues find fewer correct responses on questions about privacy and terms unfamiliar to very low health literacy participants in two analyses of the All of Us eConsent process.