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Publication

Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium

J Clin Transl Sci.
Gutierrez, Amanda M., Robinson, Jill O., Outram, Simon M., Smith, Hadley S., Kraft, Stephanie A., Donohue, Katherine E., Biesecker, Barbara B., Brothers, Kyle B., Chen, Flavia, Hailu, Benyam. Hindorff, Lucia A., Hoban, Hannah, Hsu, Rebecca L., Knight, Sara J., Koenig, Barbara A., Lewis, Katie L., Lich, Kristen Hassmiller, O’Daniel, Julianne M., Okuyama, Sonia, Tomlinson, Gail E., Waltz, Margaret, Wilfond, Benjamin S., Ackerman, Sara L., Majumder, Mary A.

Event

Race and Genetic Identities: the Promise and Pitfalls of DTC Genetic Ancestry Testing

Jada Benn Torres, PhD Vanderbilt University Race and Genetic Identities: the Promise and Pitfalls of DTC Genetic Ancestry Testing February 9, 2022, 5:30-7 pm The Direct to Consumer (DTC) genetic…

Additional Resource

NIH PRIMED (Polygenic Risk Methods in Diverse Populations) Consortium

The NIH-funded Polygenic Risk Methods in Diverse Populations (PRIMED) Consortium is developing and evaluating methods to improve the use of polygenic risk scores (PRS) to predict disease and health…
  • Polygenic risk scores
  • large datasets
  • Collaborations
  • precision medicine

Video

Ensuring Equitable Use of New Genetic Technologies: Lessons from Eugenics

ELSI Friday Forum • January 14, 2022 New genetic technologies have incrementally but steadily altered the landscape of human reproduction. These technologies include polygenic risk scores coupled…
  • genetic technologies
  • equitable access

In the Media

When They Warn of Rare Disorders, These Prenatal Tests Are Usually Wrong

The New York Times |
Sarah Kliff and Aatish Bhatia
  • Genetic Counseling / Prenatal Diagnosis

In the Media

The Questions We Should Really Be Asking After Reading the NY Times Article About Prenatal cfDNA Screening For Microdeletions

The DNA Exchange |
Robert Resta
  • Genetic Counseling
  • Genetic Counseling / Prenatal Diagnosis

Event

Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies

Join us on Friday, February 11, 2022, for the next ELSI Friday Forum, Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies. As long as genetics research has been pursued, authors…

Publication

Commentary: The eugenics legacy of the Nobelist who fathered IVF

Scientific American
Obasogie, Osagie K.

Publication

Fixing the poor: Eugenic sterilization and child welfare in the twentieth century

Johns Hopkins University Press
Ladd-Taylor, Molly

Publication

The genius factory: The curious history of the Nobel Prize sperm bank

Penguin Random House
Plotz, David