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Grant Abstract

Social Determinants of Participation in Genetic Research among Puerto Ricans and in the Puerto Rican Diaspora

Puerto Ricans are especially at risk of experiencing distributive injustice, or the structural exclusion from participating in genetic research that could potentially benefit them. Our existing…

Collection

Technologies to Operationalize Indigenous Data Sovereignty

Throughout history, data about Indigenous communities, cultures, and territories have been collected and collated through research and surveillance as part of processes of colonisation and…
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Publication

Barriers to family history knowledge and family communication among LGBTQ+ individuals in the context of hereditary cancer risk assessment

Participants who disclosed an LGBTQ+ identity in this study by Rolf and colleagues were more likely to report family dynamics with the potential to limit their family history knowledge and impair…

ELSI FRIDAY FORUM

ELSI Friday Forum Seminar Series

ABOUT ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical, legal, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00 pm ET…

Announcement

Request for Abstracts: ELSIcon2022

ELSIcon2022: Innovating for a Just and Equitable Future June 1-3, 2022 • Columbia University, New York, NY Research on the ethical, legal, and social implications (ELSI) of genetics research and…

Genomic Data Sharing: Putting Principles and Policy into Practice

ELSI Friday Forum • October 8, 2021 Genomic data governance principles were largely developed for data collection and use in research contexts. Boundaries between genome research and clinical…

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Upcoming Funding Opportunity Announcements

Research Training and Fellowships

JHU/NIH Genetic Counseling Training Program

Johns Hopkins University

Expiration Date: Dec 1, 2021

Collaborators

Stanford Medicine Stanford Center for Biomedical Ethics
Columbia University Department of Medical Humanities, and Ethics Division of Ethics Logo
The Hastings Center Logo
Personal Genetics Education Project Logo