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Grant Abstract
Social Determinants of Participation in Genetic Research among Puerto Ricans and in the Puerto Rican Diaspora
Puerto Ricans are especially at risk of experiencing distributive injustice, or the structural exclusion from participating in genetic research that could potentially benefit them. Our existing…
Collection
Technologies to Operationalize Indigenous Data Sovereignty
Throughout history, data about Indigenous communities, cultures, and territories have been collected and collated through research and surveillance as part of processes of colonisation and…
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Publication
Barriers to family history knowledge and family communication among LGBTQ+ individuals in the context of hereditary cancer risk assessment
Participants who disclosed an LGBTQ+ identity in this study by Rolf and colleagues were more likely to report family dynamics with the potential to limit their family history knowledge and impair…
News & Events
ELSI FRIDAY FORUM
ELSI Friday Forum Seminar Series
ABOUT
ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical, legal, and social implications (ELSI) of genetics and genomics research. Join us from 12:00-1:00 pm ET…
Announcement
Request for Abstracts: ELSIcon2022
ELSIcon2022: Innovating for a Just and Equitable Future
June 1-3, 2022 • Columbia University, New York, NY
Research on the ethical, legal, and social implications (ELSI) of genetics research and…
Genomic Data Sharing: Putting Principles and Policy into Practice
ELSI Friday Forum • October 8, 2021
Genomic data governance principles were largely developed for data collection and use in research contexts. Boundaries between genome research and clinical…
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Upcoming Funding Opportunity Announcements
Research Training and Fellowships
JHU/NIH Genetic Counseling Training Program
Johns Hopkins University
Expiration Date: Dec 1, 2021
Education Activity
Genome Research Experiences to Attract Talented Undergraduates into the Genomics Field to Enhance Diversity (R25 Clinical Trial Not Allowed)
NIH
Expiration Date: Jul 2, 2023
Collaborators
