New on ELSIhub
Collection
The Disability Rights Critique of Technologies that Eliminate Human Genetic Variation
The development and use of an expanding range of medical technologies that yield genetic information about embryos and fetuses has raised ethical questions about whether and how this increasingly…
Collection
Paying for Cures: The Ethics and Economics of Gene Therapies for Rare Diseases
Rare diseases, most of which have a genetic basis, collectively affect an estimated 300 million individuals worldwide and are associated with significant morbidity and mortality. Although less than…
News
ELSI in Review • June 2023
About this listing
ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2023 set explores transparency in secondary use of…
News & Events
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ELSI Friday Forum
Legal and Policy Challenges to Privacy in the Post-Genomic and Post-Dobbs Era
Join us on Friday, June 9, 2023, for the next ELSI Friday Forum.
Rapid growth in genetic understanding presents challenges for expectant parents, now
complicated by the Dobbs decision’s removal of…
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Workshop
TraineeHub: Publishing in Bioethics Journals – What You Need to Know
This session will explore the process of publishing in Bioethics journals at all stages, from inception through peer review. Editor-in-Chief of the American Journal of Bioethics (AJOB) David Magnus,…
Spotlight
Engaging Underrepresented Communities in Research
Attention to the unique inclusion and engagement needs of understudied populations is of critical importance to the advancement of genomic and precision medicine research, the elimination of health…
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Upcoming Funding Opportunity Announcements
Research Grant
Strategies for Responsibly Reporting Back Environmental Health and Non-Genomic Research Results (R01 Clinical Trial Optional)
NIH
Expiration Date: Jun 16, 2023
Cooperative Agreement
Diversity Centers for Genome Research (UG3/UH3 Clinical Trials Optional)
NIH
Expiration Date: Jun 25, 2024
Collaborators
