New on ELSIhub


The Disability Rights Critique of Technologies that Eliminate Human Genetic Variation

The development and use of an expanding range of medical technologies that yield genetic information about embryos and fetuses has raised ethical questions about whether and how this increasingly…


Paying for Cures: The Ethics and Economics of Gene Therapies for Rare Diseases

Rare diseases, most of which have a genetic basis, collectively affect an estimated 300 million individuals worldwide and are associated with significant morbidity and mortality. Although less than…


ELSI in Review • June 2023

About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2023 set explores transparency in secondary use of…
ELSI Friday Forum entitled: Legal and Policy Challenges to Privacy in the Post-Genomic and Post-Dobbs Era on June 9, 2023 at 12pm ET US with speakers Natalie Ram, JD; R. Alta Charo, JD; and Leslie Francis, PhD, JD.

ELSI Friday Forum

Legal and Policy Challenges to Privacy in the Post-Genomic and Post-Dobbs Era

Join us on Friday, June 9, 2023, for the next ELSI Friday Forum. Rapid growth in genetic understanding presents challenges for expectant parents, now complicated by the Dobbs decision’s removal of…


TraineeHub: Publishing in Bioethics Journals – What You Need to Know

This session will explore the process of publishing in Bioethics journals at all stages, from inception through peer review. Editor-in-Chief of the American Journal of Bioethics (AJOB) David Magnus,…


Engaging Underrepresented Communities in Research

Attention to the unique inclusion and engagement needs of understudied populations is of critical importance to the advancement of genomic and precision medicine research, the elimination of health…

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