CERA Working Groups

CERA Working Groups are interdisciplinary teams that aim to deepen our understanding of emerging, high priority, or understudied ELSI issues using innovative approaches. Working Group outcomes include new research, educational materials, publications for scholarly and lay audiences, online tools, and events.

The CERA Working Groups for 2020-2022 were:

• Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group
• Developing Resources for DNA Testing at the Border: BorderDNA Working Group

The CERA Working Groups for 2022-2024 were:

• Value Ethics: Mapping Strategies for Value Assessment and Reimbursement of Targeted Genomic Therapies for Rare Diseases Working Group
• Patient as Partners in Research (PPR): Co-Creating A Framework for Equitably Engaging Patients as Partners in Health Research in Africa Working Group