ELSI's Mission

What is ELSI Research?

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Three decades of ethical, legal, and social implications research: Looking back to chart a path forward

Deanne Dunbar Dolan, Sandra Soo-Jin Lee, and Mildred K. Cho

More than thirty years ago in the United States, the National Center for Human Genome Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human Genome Project (HGP), the Department of Energy (DOE), called for proposals from social scientists, ethicists, lawyers, and others to explore the ethical, legal, and social implications (ELSI) of mapping and sequencing the human genome. Today, nearly twenty years after the completion of the HGP, the ELSI Research Program of the National Human Genome Research Institute (NHGRI) continues this support. It has fostered the growth of ELSI research into a global field of study, uniquely positioned at the nexus of many academic disciplines and in proximity to basic and applied scientific research. We examine the formation of the first ELSI program and consider whether science policy in the public interest can exist within the confines of a set-aside from the NHGRI budget.

Read the full essay in Cell Genomics

 

Dolan, D. D., Soo-Jin Lee, S., & Cho, M. K. (2022).Three decades of ethical, legal, and social implications research: Looking back to chart a path forward. Cell Genomics. Advanced Online Publication. https://doi.org/10.1016/j.xgen.2022.100150

 

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