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ELSIhub | CERA - ELSIconversations

ELSIconversations

ELSIconversations is a series of networking events focused on a range of ELSI research topics. Many sessions offer practical solutions, recommend action steps, and supply useful resources. Each series brings something new to the conversation–be it a novel use of research methodologies, the latest developments in genomics, new trainee research, or any topic suggested by our community of ELSI researchers and those with an interest in ELSI research. The goal of ELSIconversations is for everyone involved to make new connections and start new conversations about ELSI research.

Upcoming Events

 

Upcoming ELSIconversations events will be posted here soon.

Make sure to bookmark this page, and regularly check our events page for upcoming events.

You can watch the recordings of previous ELSIconversations events further down this page.

To propose a new ELSIconversations event or series, please fill out our webform by clicking the button below.

 

Previous Series

 

Explore our previous ELSIconversations series and watch the recordings of each session

Exploring Difference in the Biology Classroom

About this Series

"Exploring Difference in the Biology Classroom: Bringing together educators and researchers for conversations about the ethical, legal, and social implications (ELSI) of genetics" is a collaboration between pgEd (Personal Genetics Education Project) and CERA to present the latest ELSI research as a resource for educators to use in the classroom. Each of the four events in this ELSIconversations series will have one or more ELSI researchers presenting new material followed by a discussion and a Q&A session.  

 

Session 1: How to represent wide-ranging family structures and personal identities using the latest pedigree nomenclature

Date: December 1, 3-4 pm PT / 6-7 pm ET

Speakers: Ina Amarillo, PhD & Robin Bennett, MS, LGC, PhD Hon

Co-Moderators: Marnie Gelbart, PhD & Nadine Vincenten, PhD

CLICK HERE TO WATCH THE RECORDING OF THE EVENT

Session 2: Engaging with Genetic Disability and Difference

Date: March 8 2023, 3-4 pm PT / 6-7 pm ET 

Speakers: Kara Ayers, PhD & Joel Michael Reynolds, PhD 

Moderators: Rob O'Malley, PhD & Marnie Gelbart, PhD 

CLICK HERE TO WATCH THE RECORDING OF THE EVENT

Session 3: What Genetic Ancestry Tests Mean (and What They Don't)

Date: April 11 2023, 3-4 pm PT / 6-7 pm ET

Speakers: Janina Jeff, PhD, MS & Jada Benn Torres, PhD

Moderators: Rob O'Malley, PhD & Nadine Vincenten, PhD

CLICK HERE TO WATCH THE RECORDING OF THE EVENT 

Session 4: Beyond Mendel: Leading with Complexity when Teaching Human Genetics

Date: May 11 2023, 3-4 pm PT / 6-7 pm ET

Speakers: Shawneequa Callier, JD, MA & Eimear Kenny, PhD

Moderators: Rob O'Malley, PhD 

CLICK HERE TO WATCH THE RECORDING OF THE EVENT

ELSIconversations on Population Genetic Screening Programs

About this series

Ethical considerations and strategies for launching, evaluating, and improving population genetic screening programs 

At the ELSI Congress in June 2022, genetic counselor Kim Foss and ELSI scholar Kate Saylor led a dynamic networking session on “Ethical Topics Associated with Population Genomic Screening”. Participants were eager to expand on some of the key issues that arose during that session. This series features 3 interactive discussions built on the ELSIcon2022 networking session.

Session 1: Illuminating Ethical Issues Encountered in Population Screening Programs

Date: January 20, 2023 12-1 pm ET

Speakers: Aaron Goldenberg, PhD, MA, MPH & Amy Sturm, MS, CGC, & Adam Buchanan, MS, MPH, CGC

Moderator: Kim Foss, MS, CGC 

In the first of three sessions, panelists with experience with population genetic screening programs discussed issues that have arisen with existing screening programs. Topics included ethical and equity considerations of informed consent, defining utility, selecting genes of interest, and managing downstream care. Recognizing that many people in the audience will also have relevant experience, everyone will be invited to share their experiences and concerns through live discussion with the panelists and through an online whiteboard. 

CLICK HERE TO WATCH THE RECORDING OF THE EVENT

Session 2. Constructing Strategies to Address and Assess Equity, Outreach, and Impact

Date: January 27, 2023 12-1 pm ET

Speakers: Amy Lemke, PhD, MS & Yue Guan, MB, PhD, ScM

Moderator: Kate Saylor, PhD

The second session highlighted strategies and solutions to some of the issues raised in Session 1. There was specific focus on community engaged research and implementation strategies that target equity and community-specific needs. Audience members were again invited to share their own experiences of what strategies have worked well and attempts that have been less successful. 

CLICK HERE TO WATCH THE RECORDING OF THE EVENT

Session 3. Responsible Stewardship: Establishing Standard Data Elements and a Community of Practice

Date: February 3, 2023 12-1 pm ET

Speakers: Alanna Rahm, PhD, MS, LGC & Megan Roberts, PhD

Moderator: Kim Foss, MS, CGC

In the final session, panelists lead the charge for establishing a community of practice that is best able to share experiences across programs. Topics included key data elements, reporting and sharing, promoting equity through knowledge sharing, and ensuring program sustainability. This session was forward-looking, with the goal of generating ideas for building a community of health services researchers, program directors, clinicians, and ELSI researchers who care about promoting ethical implementation of population genomic screening. 

CLICK HERE TO WATCH THE RECORDING OF THE EVENT

ELSIcon2022 Series

About this Series

This series included selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors briefly recapped their research at each session, followed by moderated discussion and audience Q&A. 

Access to Genetic Screening and Therapies: Case Study of Sickle Cell Disease

February 15 2023, 4-5 pm ET / 1-2 pm PT - Access to Genetic Screening and Therapies: Case Study of Sickle Cell Disease 

CLICK HERE TO WATCH THE RECORDING OF THE EVENT AND FOR MORE INFORMATION

 

Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia

December 16 - Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia

CLICK HERE TO WATCH THE RECORDING OF THE EVENT AND FOR MORE INFORMATION 

The All of Us Research Program: What Duties do Researchers Have When Conducting Precision Medicine Research?

December 13 - The All of Us Research Program: What Duties do Researchers Have When Conducting Precision Medicine Research? 

CLICK HERE TO WATCH THE RECORDING OF THE EVENT AND FOR MORE INFORMATION

Stakeholder Perspectives on Data Sharing and Privacy

November 29 - Stakeholder Perspectives on Data Sharing and Privacy

CLICK HERE TO WATCH THE RECORDING OF THE EVENT AND FOR MORE INFORMATION

Terms and Conditions

By registering for an ELSIhub event, attendees agree to abide by the ELSIhub Code of Conduct: https://elsihub.org/news/code-conduct

For those who cannot attend the live event, the event will be recorded and archived on the ELSIhub Video page. Closed captioning and/or transcripts will be provided for live and recorded events.

If you have any questions, including requests regarding accessibility, please email us at: [email protected].