Lay press articles and media on ELSI issues and related areas of interest to the ELSI community.
1 - 10 of 222
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The Atlantic
Genetic Discrimination is Coming for Us All
Insurers are refusing to cover Americans whose DNA reveals health risks. It’s perfectly legal.November 12, 2024
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The New York Times
Life Without Sickle Cell Beckons Boy Who Completed Gene Therapy
After 44 days, Kendric Cromer, 12, left the hospital. While his family feels fortunate that he was the first to receive a treatment, their difficult experiences hint at what others will be up against.October 21, 2024
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MIT Technology Review
Why we need safeguards against genetic discrimination
There's a lot of genetic data out there. We're still figuring out how to use and protect it.July 19, 2024
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STAT News & Undark Magazine
The untold story of the Human Genome Project: How one man’s DNA became a pillar of genetics
The sequence of some 3 billion DNA base pairs that comprise our genome was supposed to be a mosaic, assembled from multiple anonymous people to protect the identity of the volunteer donors. But that’s not how it turned out: One individual’s DNA accounted for the vast majority of…July 9, 2024
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Bloomsberg Businessweek
The DNA Test Delusion
Mass-market genetic testing has little to offer most people. That’s a big problem for 23andMe.May 15, 2024
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STAT News
DNA test that predicts opioid addiction should be pulled off the market, critics urge the FDA
Under pressure to help combat this public health crisis, the Food and Drug Administration has begun taking steps intended to reduce overdoses and opioid use disorder, but critics warn against use of controversial DNA test.April 4, 2024
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Nature
NEWS 23 February 2024 ‘All of Us’ genetics chart stirs unease over controversial depiction of race
Debate over figure connecting genes, race and ethnicity reignites concerns among geneticists about how to represent human diversity.February 23, 2024
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STAT News
‘All of Us’ reports half of the genomes it has sequenced are from non-Europeans
Six years ago, the National Institutes of Health placed its biggest ever bet on precision medicine, launching a study to enroll over 1 million participants in an ambitious data-gathering gambit unmatched in its scope and diversity.February 19, 2024
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The New York Times
23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says
The class-action suit said the genetic testing company failed to notify customers whose personal information was compiled into “curated” lists that were sold on the dark web.January 26, 2024
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Stat News
U.K. approves world’s first CRISPR-based medicine, giving green light to therapy for sickle cell, thalassemia
Regulators in the U.K. on Thursday approved a CRISPR-based medicine to treat both sickle cell disease and beta thalassemia, making it the world’s first therapy built on the revolutionary gene-editing technology and ushering in a new era of genetic medicine.November 16, 2023