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Lay press articles and media on ELSI issues and related areas of interest to the ELSI community.

1 - 10 of 211

Stat News

U.K. approves world’s first CRISPR-based medicine, giving green light to therapy for sickle cell, thalassemia

Regulators in the U.K. on Thursday approved a CRISPR-based medicine to treat both sickle cell disease and beta thalassemia, making it the world’s first therapy built on the revolutionary gene-editing technology and ushering in a new era of genetic medicine. 

November 16, 2023

The New York Times

Panel Says That Innovative Sickle Cell Cure Is Safe Enough for Patients

The decision by an advisory committee may lead to Food and Drug Administration approval of the first treatment for humans that uses the CRISPR gene-editing system

October 31, 2023

The Los Angeles Times

People of African ancestry are poorly represented in genetic studies. This effort will change that

Scientists are setting out to collect genetic material from 500,000 people of African ancestry to create what they believe will be the world’s largest database of genomic information from the population.

October 18, 2023

The New York Times

Family of Henrietta Lacks Settles With Biotech Company That Used Her Cells

Ms. Lacks’s family had accused Thermo Fisher Scientific of profiting from her cells, which have contributed to revolutionary advances in medicine, without seeking their permission.

August 1, 2023

BBC

The quest for the era of personalised medicine

The Human Genome Project was supposed to lead to personalised medicine tailored to our DNA. It's finally happening, but it is proving more difficult than anyone could have imagined.

June 4, 2023

The New York Times

Untangling Rosalind Franklin’s Role in DNA Discovery, 70 Years On

Historians have long debated the role that Dr. Franklin played in identifying the double helix. A new opinion essay argues that she was an “equal contributor.”

April 25, 2023

NASEM Health and Medicine

Researchers Need to Rethink and Justify How and Why Race, Ethnicity, and Ancestry Labels Are Used in Genetics and Genomics Research, Says New Report

Researchers and scientists who utilize genetic and genomic data should rethink and justify how and why they use race, ethnicity, and ancestry labels in their work, says a new National Academies of Sciences, Engineering, and Medicine report. 

March 14, 2023

MIT Technology Review

Forget designer babies. Here’s how CRISPR is really changing lives

The gene-editing tool is being tested in people, and the first treatment could be approved this year.

March 7, 2023

BBC

The search for the world's 'missing' genomes

Enormous strides have been made to unravel the secrets of the human genome, so why are we missing the genetic information of most of the planet?

February 27, 2023