Lay press articles and media on ELSI issues and related areas of interest to the ELSI community.
1 - 10 of 214
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Nature
NEWS 23 February 2024 ‘All of Us’ genetics chart stirs unease over controversial depiction of race
Debate over figure connecting genes, race and ethnicity reignites concerns among geneticists about how to represent human diversity.February 23, 2024
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STAT News
‘All of Us’ reports half of the genomes it has sequenced are from non-Europeans
Six years ago, the National Institutes of Health placed its biggest ever bet on precision medicine, launching a study to enroll over 1 million participants in an ambitious data-gathering gambit unmatched in its scope and diversity.February 19, 2024
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The New York Times
23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says
The class-action suit said the genetic testing company failed to notify customers whose personal information was compiled into “curated” lists that were sold on the dark web.January 26, 2024
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Stat News
U.K. approves world’s first CRISPR-based medicine, giving green light to therapy for sickle cell, thalassemia
Regulators in the U.K. on Thursday approved a CRISPR-based medicine to treat both sickle cell disease and beta thalassemia, making it the world’s first therapy built on the revolutionary gene-editing technology and ushering in a new era of genetic medicine.November 16, 2023
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The New York Times
Panel Says That Innovative Sickle Cell Cure Is Safe Enough for Patients
The decision by an advisory committee may lead to Food and Drug Administration approval of the first treatment for humans that uses the CRISPR gene-editing systemOctober 31, 2023
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The Los Angeles Times
People of African ancestry are poorly represented in genetic studies. This effort will change that
Scientists are setting out to collect genetic material from 500,000 people of African ancestry to create what they believe will be the world’s largest database of genomic information from the population.October 18, 2023
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The New York Times
Family of Henrietta Lacks Settles With Biotech Company That Used Her Cells
Ms. Lacks’s family had accused Thermo Fisher Scientific of profiting from her cells, which have contributed to revolutionary advances in medicine, without seeking their permission.August 1, 2023
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BBC
The quest for the era of personalised medicine
The Human Genome Project was supposed to lead to personalised medicine tailored to our DNA. It's finally happening, but it is proving more difficult than anyone could have imagined.June 4, 2023
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The New York Times
Untangling Rosalind Franklin’s Role in DNA Discovery, 70 Years On
Historians have long debated the role that Dr. Franklin played in identifying the double helix. A new opinion essay argues that she was an “equal contributor.”April 25, 2023
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NASEM Health and Medicine
Researchers Need to Rethink and Justify How and Why Race, Ethnicity, and Ancestry Labels Are Used in Genetics and Genomics Research, Says New Report
Researchers and scientists who utilize genetic and genomic data should rethink and justify how and why they use race, ethnicity, and ancestry labels in their work, says a new National Academies of Sciences, Engineering, and Medicine report.March 14, 2023