In The Spotlight
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Video: Webinar
April 2025 EFF: Biogenome Science at an International Scale: Navigating ELSI Challenges
The Earth BioGenome Project (EBP) aims to collect whole genome sequences from all eukaryotic species on Earth before 2028 and produce an open DNA… -
News
Now Accepting Monthly AJOB Target Article Proposals on EFF Topics
The American Journal of Bioethics (AJOB) is pleased to welcome target article proposals keyed to ELSI Friday Forum topics via the Center for… -
News: Article
CERA Shout-Outs
We are thrilled to announce the launch of CERA Shout-Outs, a special quarterly section of our newsletter, debuting in January 2025. This is your…
Upcoming Events
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May 9
ELSI Friday Forum
ELSI Friday Forum | The ELSI of Social Epigenetics
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May 30
Workshop
ELSI Journal Club | May
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Sep 17 - 19
Conference
Precision Genomics for Human Health
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Oct 14 - 18
Conference
ASHG Annual Meeting 2025
In the Media
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The Atlantic
Genetic Discrimination is Coming for Us All
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The New York Times
Life Without Sickle Cell Beckons Boy Who Completed Gene Therapy
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MIT Technology Review
Why we need safeguards against genetic discrimination
New Publications
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Journal Article
Patient consent and the right to notice and explanation of AI systems used in health care
by Meghan E. Hurley, Benjamin H. Lang, Kristin Marie Kostick-Quenet, Jared N. Smith, & Jennifer Blumenthal-Barby
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Journal Article
Pediatric DTC genetic testing for adult-onset inherited cancer risk: The perspectives of high-risk parents
by Madison K. Kilbride, Beth N. Peshkin, Jada G. Hamilton, Jamie Brower, Hannah Ovadia, Lainie Friedman Ross, Rosalba Sacca, Beth Tarini, Susan M. Domchek, Sarah Vittone, Marcelo M. Sleiman Jr., Mary Rose Yockel, Caroline Salafia, Claudine Isaacs, Benjamin S. Wilfond, Muriel R. Statman, & Kenneth P. Tercyak
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Journal Article
The legalome: Microbiology, omics and criminal justice
by Alan C. Logan, Pragya Mishra, & Susan L. Prescott
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Latest Webinar
TraineeHub - Understanding and Applying for NIH K-Grants
Session title: TraineeHub Workshop: Understanding and Applying for NIH K-Grants