In The Spotlight
-
Image
Event: ELSICongress
The 6th ELSI Congress | ELSIcon2024
ELSIcon2024: The 6th ELSI Congress will take place at Columbia University in New York City from June 10-12, 2024. The 6th ELSI Congress welcomes all with an interest in the ethical, legal, and social implications (ELSI) of genomic research. Researchers, scholars,…
-
News: Spotlight
ELSI Research Methods Spotlight: Social Network Analysis
Laura M. Koehly, Ph.D., Chief & Senior Investigator at the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research… -
Video
TraineeHub | Navigating Authorship: Who's on First?
Publishing in a top-notch scientific journal is a great reason for celebration. But getting there takes time, effort, and the ability to navigate… -
Video
Twisted Helix: Can Public-Private Partnership Genomic Projects Be Fair and Equitable?
Biotechnological innovation almost always entails all three strands of the triple helix: academia, government, and industry. This is increasingly…
Upcoming Events
-
Mar 29
ELSIconversations
An Overview of PGx Testing from an ELSI, Psychology, and Psychiatry…
-
Apr 5
ELSIconversations
Exploring Ethical, Equity, and Regulatory Implications for…
-
Apr 7 - 9
-
Apr 12
ELSI Friday Forum
Why Film and TV? ELSI Research and the Public Imagination
In the Media
-
The New York Times
23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says
ELSIhub Featured News
New Publications
-
Journal Article
Humane genomics education can reduce racism
The results of a randomized trial by Donovan and colleagues suggest that "humane genomics education"—a curricular intervention that goes beyond basic, Mendelian genetics to tackle complex genomic concepts—result in less belief in genetic essentialism and support a scientifically accurate understanding of race as a social construction.
-
Journal Article
Public opinions and attitudes toward non-invasive prenatal testing on Reddit: Content and sentiment analysis
Xiao, Yan, and Hayeems analyzed posts and comments from four Reddit communities focused on non-invasive prenatal testing (NIPT) and found that most users thought that NIPT was beneficial or worthwhile and expressed more positive emotions than negative emotions when discussing NIPT. It is notable that “anticipation”, “trust” and “joy” were the sentiments expressed most often.
-
Journal Article
Harvey and Gurvir’s Law: Ontario Bill for Quality Prenatal Information about Down Syndrome: Terminology, feasibility, and ethical issues
Lemoine and colleagues discuss a bill reintroduced to the Legislative Assembly of Ontario, which aims to end the bias and stigma associated with a prenatal diagnosis of Down syndrome. They advocate for specific word choice revisions, including having clinicians recommend rather than require a 48-hour waiting period to make an informed choice.
-
Latest Conference
March 2024 ELSI Friday Forum: The Impact of Dobbs on Emerging Reproductive Technologies
In 2022 the US Supreme Court Dobbs vs. Jackson Women’s Health Organization overturned federal protection for abortion. This historic ruling not only relegates this authority to…