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Michie and Allyse argue that the expansion of prenatal screening is accompanied by societal expectations that potential mothers utilize it and consider the “burden” of their future child on society.
Boardman and Clark explored how 514 adults perceive the seriousness of their genetic condition to inform reproductive decision making and screening policy. Unlike appraisals by clinical professionals, most reported good health and the capacity for a good quality of life.
How scientists perceive CRISPR's translational promise and the implications for individuals with genetic conditions
Although they occupy a new role as spokespersons for CRISPR-based cures, Halpern and colleagues find that bench scientists lack experiences with individuals with genetic conditions and the bioethical dilemmas of translational research.