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News: ELSI FRIDAY FORUM
How to represent wide-ranging family structures and personal…
Workshop on Returning Individual Genomic Results: Considerations for…
Day 5 | Ask a Family Member
Digital twins and virtual patients: Ethics of representation for…
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Clayton, Embí, and Malin describe how state laws that limit or ban abortion may result in new threats to health information security and outline policy options.
Mackey and colleagues describe how Indigenous data sovereignty (IDS) principles could be operationalized with blockchain technology.
Should health systems share genetic findings with at-risk relatives when the proband is deceased? Interviews with individuals diagnosed with Lynch syndrome
The consensus among the participants interviewed by Hunter and colleagues was that health systems should inform relatives of genetic findings following a patient’s death; should deliver them a few months after, but within a year; and have a knowledgeable professional share the information.