In The Spotlight
-
Video
January 2025 EFF: Public-Private Partnerships for Gene Therapies: What Does the Public Get?
Publicly-funded researchers frequently transfer their gene therapy and gene-editing medical research to venture capital-funded startups for clinical… -
News: Article
CERA Shout-Outs
We are thrilled to announce the launch of CERA Shout-Outs, a special quarterly section of our newsletter, debuting in January 2025. This is your… -
News: Spotlight
ELSI Abroad: Spotlight on South Korea
In this seventh installment of the ELSI Abroad series, CERA spoke with Ilhak Lee, M.D., Ph.D., and Hannah Kim, M.D., Ph.D., about ELSI research in…
Upcoming Events
-
Sep 17 - 19
Conference
Precision Genomics for Human Health
-
Oct 14 - 18
Conference
ASHG Annual Meeting 2025
In the Media
-
The Atlantic
Genetic Discrimination is Coming for Us All
-
The New York Times
Life Without Sickle Cell Beckons Boy Who Completed Gene Therapy
-
MIT Technology Review
Why we need safeguards against genetic discrimination
New Publications
-
Journal Article
Bankruptcy, genetic information, and privacy - Selling personal information
by Sara Gerke, Melissa B. Jacoby, & I. Glenn Cohen
-
Journal Article
Overcoming challenges associated with broad sharing of human genomic data
by Jonathan E. LoTempio & Jonathan D. Moreno
-
Journal Article
Is germline genome-editing person-affecting or identity- affecting, and does it matter?
by Andrew McGee & Sinead Prince
-
Latest Webinar
April 2025 EFF: Biogenome Science at an International Scale: Navigating ELSI Challenges
The Earth BioGenome Project (EBP) aims to collect whole genome sequences from all eukaryotic species on Earth before 2028 and produce an open DNA database.