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Announcement
CERA Working Groups - Call for Proposals
The Center for ELSI Resources and Analysis (CERA) is an interdisciplinary center that connects scientists, scholars, policymakers, journalists and the general public with information about the…
ELSI FRIDAY FORUM
ELSI Friday Forum Seminar Series
ABOUT
ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical, legal, and social implications (ELSI) of genetics and genomics research. Join us from 12:00-1:00 pm ET…
Spotlight
Informed Consent in Genomic Medicine – Strengthening Assessment, Ethical Resilience, Practice
The GE2P2 Global Foundation – a 2016 spin-off from the Division of Medical Ethics, NYU School of Medicine – has launched a multi-year initiative to assess and materially strengthen informed consent…
NIH Announcement
NIH Requests Information on Developing Consent Language for Future Use of Data and Biospecimens
On July 1, 2021 the National Institutes of Health (NIH) announced a Request for Information (RFI) on the utility and useability of Consent for Da
Spotlight
Genetics and Responsibility: More Complicated Than We’d Thought
Watch the recordings of the symposium here
By Erik Parens, PhD and Paul S. Appelbaum, MD
ELSIhub News
Why it is Important to Call Out Racist Language Amongst Our Professional Peers
Recently, on a panel at a conference of a medical professional society, the president of the society used a racist term that is an ethnic slur used to refer to Asians. The speaker did not publicly…
Spotlight
Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group
Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…