Questionnaire

Expanded Carrier Screening Questionnaire

Author(s):

Conijn, Thirsa

Nijmeijer, Stephanie C. M.

Lakeman, Phillis

Henneman, Lidewij

Wijburg, Frits A.

Haverman, Lotte

Year:

2020

Conjin and colleagues created this questionnaire to assess genetic knowledge, the perceived severity of MPS III (Sanfilippo disease), perceived risk, and attitudes toward expanded carrier screening (ECS). The educational text, video, and questionnaire used in this study by Conjin and colleagues were originally in Dutch but the tools were translated to English for publication.

Research Population:

Adults

Citation:

Conijn, T., Nijmeijer, S. C. M., Lakeman, P., Henneman, L., Wijburg, F. A., & Haverman, L. (2020). Preconception expanded carrier screening: Impact of information presented by text or video on genetic knowledge and attitudes. Journal of Genetic Counseling, 30(2), 457-469.

https://doi.org/10.1002/jgc4.1332

Contact:

[email protected]

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