In The Spotlight
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ELSI Friday Forum Seminar Series
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Wrestling with Social and Behavioral Genomics
Event: ELSIconversations
Illuminating Ethical Issues Encountered in Population Screening Programs
News: Spotlight
The Genetic Discrimination Observatory: A Key Global Resource in Addressing Genetic Discrimination
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ELSIconversations
Constructing Strategies to Address and Assess Equity, Outreach, and…
ELSIconversations
Responsible Stewardship: Establishing Standard Data Elements and a…
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Indigenizing Genomics and Advancing Indigenous Data Sovereignty
ELSIconversations
Access to Genetic Screening and Therapies: Case Study of Sickle Cell…
In the Media
The New York Times
They Created a Drug for Susannah. What About Millions of Other Patients?
The New York Times
The Disease Took Zara, Then Sara. Could Ayla Be Saved?
ELSIhub Featured News
New Publications
From collected stamps to hair locks: Ethical and legal implications of testing DNA found on privately owned family artifacts
McKibbin, Shabani, and Larmuseau outline ethical and legal risks associated with artifact DNA testing (artDNA) and recommend screening out artifacts that are likely to generate serious risks and preliminary testing to guide the risk classification and mitigation strategies.
Can genomic research make a useful contribution to social policy?
Asbury, McBride, and Bawn review two reports and conclude that policy makers should focus on increasing genetic literacy in the UK through public education and that scientists should continue efforts to increase ancestral diversity in genomic research.
Extending the CARE Principles from tribal research policies to benefit sharing in genomic research
Carroll and colleagues analyze the content of research governance documents from 26 U.S. tribal communities and recommend the addition of explicit requirements for benefit sharing.
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