Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
11 - 16 of 16 Research Tools
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CSER Phase 1: Personalized Oncology Through High-throughput Sequencing:
MI-ONCOSEQ Study Protocol
Year: 2015The Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) (formerly known as “Personalized Medicine Based on Molecular Profiling of Patients wit
Research Population: Adults -
CSER Phase 1: Personalized Medicine Based on Molecular Profiling of Pediatric and Young Adult Patients with Cancer Study Protocol
Year: 2015The Personalized Medicine Based on Molecular Profiling of Patients with Cancer implements a mechanism for patients who have advanced or refractory cancer to undergo tumor sequencing, sequence analy
Research Population: Adults -
CSER Phase 1: Personalized Oncology Through High-throughput Sequencing:
MI-ONCOSEQ Study ProtocolYear: 2015The Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) (formerly known as “Personalized Medicine Based on Molecular Profiling of Patients wit
Research Population: Adults -
Expanded Carrier Screening Questionnaire
Year: 2020Conjin and colleagues created this questionnaire to assess genetic knowledge, the perceived severity of MPS III (Sanfilippo disease), perceived risk, and attitudes toward expanded carrier screening
Research Population: AdultsContact: [email protected] -
REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale
Year: 2010Chung and colleagues created the REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale to measure psychological impact of genetic susceptibility testing for Alzheimer disease (AD).
Research Population: AdultsValidation(s):- Chung, W, W., Chen, C. A., Cupples, L. A., Roberts, J. Scott, Hiraki, S. C., Nair, A. K., Green, R. C., & Stern, R. A. (2009). A new scale measuring psychologic impact of genetic susceptibility testing for Alzheimer disease. Alzheimer Disease & Associated Disorders, 23(1), 50-56.
Contact: [email protected] -
The Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) Questionnaire
Year: 2017Carver and colleagues developed the Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) questionnaire to assess college students' knowledge of genetics, including gene-env
Research Population: AdultsContact: [email protected]