Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
121 - 130 of 172 Research Tools
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California Consumers’ Views of Data Sharing for Healthcare And Research Survey
Year: 2015Kim, Joseph, and Ohno-Machado created the California Consumers’ Views of Data Sharing for Healthcare And Research Survey to assess technology use, opinions about electronic health records and reses
Research Population: Adults -
Genomic Results Educational Video for Adolescents
Year: 2019This 17 minute video provides adolescents with information on the meaning, limitations, and potential benefits and risks of receiving positive and negative genomic test results.
Research Population: AdolescentsContact: [email protected] -
eMERGE III Health Care Provider Work Group: Pre-return of Results Physician Interview Guide
Year: 2019This semi-structured interview guide provides physicians with scenarios in which adult and pediatric patients receive unsolicited genomic results and elicits their views about the need for provider
Research Population: PhysiciansContact: [email protected] -
Provider Perceptions of Patient-Generated Family Health Histories Survey
Year: 2009This survey was designed to elicit responses from providers’ regarding their experiences with and perceptions about patient-generated family histories.
Research Population: PhysiciansContact: [email protected] -
Prenatal Diagnoses of Sex Chromosome Aneuploidies Interview Guide
Year: 2019This semi-structured interview guide is intended for use with individuals diagnosed with a sex chromosome aneuploidy (SCA) or with parents of a child diagnosed with a SCA.
Research Population: Adults -
Prenatal Screening Scenario
Year: 2016To examine participants' views of prenatal testing, Steinbach and colleagues developed a scenario that describes a 40-year-old pregnant patient who is offered prenatal screening for trisomies
Research Population: AdultsContact: [email protected] -
Genetic Genealogy Experiences Survey
Year: 2022Guerrini and colleagues designed the Genetic Genealogy Experiences Survey to gather information about the experiences of users of genetic relative-finder services offered by direct-to-consumer gene
Research Population: AdultsContact: [email protected] -
Decision Tree to Assist with Self-Regulation of CRISPR Basic Research
Year: 2022Courtright-Lim designed this decision tree to help researchers, funding agencies, institutional review boards, and ethics committees determine when social interventions may result in a better use o
Research Population: Adults -
Consent to Get DNA Results Form, All of Us Research Program
Year: 2021This consent form, created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants, provides information about the DNA results available to participants and
Research Population: Adults -
Intro to Consent Video for American Indian and Alaska Native Participants, All of Us Research Program
Year: 2018This 28 second video for American Indian and Alaska Native participants briefly introducs the concept of consent.
Research Population: AdultsContact: [email protected]