Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
131 - 140 of 201 Research Tools
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DNA Ancestry Testing Survey
Year: 2021Rubanovich and colleagues created the DNA Ancestry Testing Survey to examine the impact of DNA ancestry test results on perception of ethnic and racial identities.
Research Population: AdultsContact: [email protected] -
San Diego Blood Bank Survey
Year: 2018Morton, Bixenman, & Wellis designed this fifteen-item survey to measure blood donors' interest in participating in a hypothetical study, similar to the All of Us Research Program, which se
Research Population: AdultsContact: [email protected] -
Health Data Exploration Survey Questions (Individuals)
Year: 2015To understand challenges involved in the use of personal health data (PHD) in research, Bietz and colleagues created Health Data Exploration Survey Questions (Individuals) that examines the experie
Research Population: Adults -
Health Data Exploration Survey Questions (Researchers)
Year: 2015Bietz and colleagues created the Health Data Exploration Survey Questions (Researchers) to examine the experiences with and attitudes about self-tracking data among researchers who could potentiall
Research Population: Adults -
California Consumers’ Views of Data Sharing for Healthcare And Research Survey
Year: 2015Kim, Joseph, and Ohno-Machado created the California Consumers’ Views of Data Sharing for Healthcare And Research Survey to assess technology use, opinions about electronic health records and reses
Research Population: Adults -
Prenatal Diagnoses of Sex Chromosome Aneuploidies Interview Guide
Year: 2019This semi-structured interview guide is intended for use with individuals diagnosed with a sex chromosome aneuploidy (SCA) or with parents of a child diagnosed with a SCA.
Research Population: Adults -
Prenatal Screening Scenario
Year: 2016To examine participants' views of prenatal testing, Steinbach and colleagues developed a scenario that describes a 40-year-old pregnant patient who is offered prenatal screening for trisomies
Research Population: AdultsContact: [email protected] -
Genetic Genealogy Experiences Survey
Year: 2022Guerrini and colleagues designed the Genetic Genealogy Experiences Survey to gather information about the experiences of users of genetic relative-finder services offered by direct-to-consumer gene
Research Population: AdultsContact: [email protected] -
Decision Tree to Assist with Self-Regulation of CRISPR Basic Research
Year: 2022Courtright-Lim designed this decision tree to help researchers, funding agencies, institutional review boards, and ethics committees determine when social interventions may result in a better use o
Research Population: Adults -
Consent Form, All of Us Research Program
Year: 2021This consent form is utilized by the All of Us Research Program (All of Us), a health research program, funded by the National Institutes of Health, that will study health data from over one millio
Research Population: AdultsValidation(s):- Doerr, M., Moore, S., Barone, V., Sutherland, S., Bot, B. M., Suver, C., & Wilbanks, J. (2021). Assessment of the All of Us research program's informed consent process. AJOB Empirical Bioethics, 12(2), 72–83.