Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
221 - 226 of 226 Research Tools
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How Does Genetic Ancestry Testing Affect Perceptions of Race? Conjoint Survey Instrument
Year: 2022The Conjoint Survey Instrument is a survey instrument developed for the study “How Does Genetic Ancestry Testing Affect Perceptions of Race?” The study explores how respondents make racial classifi
Research Population: AdultsContact: [email protected] -
Black-White Race Morphs Research Tool
Year: 2022The Black-White Race Morphs Research Tool is a resource comprised of 240 morphed images combining same-gender Black and White face images.
Research Population: AdultsContact: [email protected] -
Race Attributes in Clinical Evaluation (RACE) Scale
Bonham and colleagues developed the Racial Attributes in Clinical Evaluation (RACE) scale to assess the degree to which health professionals employ race in their clinical decision making.
Research Population: Physicians, Nurse Practitioners, NursesValidation(s):Bonham, V. L., Sellers, S. L., Woolford, S. (2014). Physicians’ knowledge, use, and beliefs about race and genetic variation: New measures and new insight. BMC Health Services Research, 14, Article 456.
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The Parental Personal Utility Scale (Parent PrU)
Year: 2024The Personal Utility Scale (PrU) asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to 7 (extremely useful).
Research Population: Adults, ParentsValidation(s):Turbitt, E., Kohler, J. N., Brothers, K. B., Outram, S. M., Rini, C., Sahin-Hodoglugil, N., Leo, M. C., & Biesecker, B. B. (2024) The Parent PrU: A measure to assess personal utility of pediatric genomic results. Genetics in Medicine, 16(1), Article 100994.
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Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, and Uplift Scales
Year: 2023The Perceived Caregiving Interactions and Behaviors: Malfeasance, Nonfeasance, Uplift Scales are used to examine whether levels of nonfeasance, malfeasance, and uplift are associated with the…
Research Population: AdultsValidation(s):Ashida, S., Marcum, C. S., & Koehly, L. M. (2017). Unmet expectations in Alzheimer’s family caregiving: Interactional characteristics associated with perceived under-contribution. The Gerontologist, 58(2), e46–e55.
Koehly, L. M., Ashida, S., Sumrall, S., & Hyman, S. (2023). Caregiving interactions and behaviors in the care of children with rare genetic or undiagnosed conditions. Journal of Child and Family Studies, 32, 3501–3514.
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Hierarchical Mapping Technique
Year: 1986The Hierarchical Mapping Technique, best described in the measures section of the validation included here, enables the collection of information about social network structure using a concentric…
Research Population: AdultsValidation(s):Antonucci, T. C., Ajrouch, K. J., & Webster, N. J. (2019). Convoys of social relations: Cohort similarities and differences over 25 years. Psychology and Aging, 34(8), 1158-1169.
Contact: [email protected]