Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
171 - 180 of 224 Research Tools
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Prenatal Diagnoses of Sex Chromosome Aneuploidies Interview Guide
Year: 2019This semi-structured interview guide is intended for use with individuals diagnosed with a sex chromosome aneuploidy (SCA) or with parents of a child diagnosed with a SCA.
Research Population: Adults -
Prenatal Screening Scenario
Year: 2016To examine participants' views of prenatal testing, Steinbach and colleagues developed a scenario that describes a 40-year-old pregnant patient who is offered prenatal screening for trisomies
Research Population: AdultsContact: [email protected] -
Genetic Genealogy Experiences Survey
Year: 2022Guerrini and colleagues designed the Genetic Genealogy Experiences Survey to gather information about the experiences of users of genetic relative-finder services offered by direct-to-consumer gene
Research Population: AdultsContact: [email protected] -
Decision Tree to Assist with Self-Regulation of CRISPR Basic Research
Year: 2022Courtright-Lim designed this decision tree to help researchers, funding agencies, institutional review boards, and ethics committees determine when social interventions may result in a better use o
Research Population: Adults -
Consent Form, All of Us Research Program
Year: 2021This consent form is utilized by the All of Us Research Program (All of Us), a health research program, funded by the National Institutes of Health, that will study health data from over one millio
Research Population: AdultsValidation(s):- Doerr, M., Moore, S., Barone, V., Sutherland, S., Bot, B. M., Suver, C., & Wilbanks, J. (2021). Assessment of the All of Us research program's informed consent process. AJOB Empirical Bioethics, 12(2), 72–83.
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HIPAA Authorization for Research–Electronic Health Record Supplement, All of Us Research Program
Year: 2018This form includes information for participants and collects a consent for the the All of Us Research Program (All of Us) to access to their electronic health records.
Research Population: AdultsValidation(s):- Doerr, M., Moore, S., Barone, V., Sutherland, S., Bot, B. M., Suver, C., & Wilbanks, J. (2021). Assessment of the All of Us research program's informed consent process. AJOB Empirical Bioethics, 12(2), 72–83.
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Consent to Get DNA Results Form, All of Us Research Program
Year: 2021This consent form, created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants, provides information about the DNA results available to participants and
Research Population: Adults -
Intro to Consent Video for American Indian and Alaska Native Participants, All of Us Research Program
Year: 2018This 28 second video for American Indian and Alaska Native participants briefly introducs the concept of consent.
Research Population: AdultsContact: [email protected] -
Intro to Consent Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
Year: 2018This 28 second video for American Indian and Alaska Native participants briefly introducs the concept of consent.
Research Population: AdultsContact: [email protected] -
Basic Information Video for American Indian and Alaska Native Participants, All of Us Research Program
Year: 2018This 22 second video for American Indian and Alaska Native participants explains the required contact information and the efforts the All of Us Research Program (All of Us) will undertake to find a
Research Population: AdultsContact: [email protected]