Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
41 - 49 of 49 Research Tools
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DNA Ancestry Testing Survey
Year: 2021Rubanovich and colleagues created the DNA Ancestry Testing Survey to examine the impact of DNA ancestry test results on perception of ethnic and racial identities.
Research Population: AdultsContact: [email protected] -
San Diego Blood Bank Survey
Year: 2018Morton, Bixenman, & Wellis designed this fifteen-item survey to measure blood donors' interest in participating in a hypothetical study, similar to the All of Us Research Program, which se
Research Population: AdultsContact: [email protected] -
Health Data Exploration Survey Questions (Individuals)
Year: 2015To understand challenges involved in the use of personal health data (PHD) in research, Bietz and colleagues created Health Data Exploration Survey Questions (Individuals) that examines the experie
Research Population: Adults -
Health Data Exploration Survey Questions (Researchers)
Year: 2015Bietz and colleagues created the Health Data Exploration Survey Questions (Researchers) to examine the experiences with and attitudes about self-tracking data among researchers who could potentiall
Research Population: Adults -
California Consumers’ Views of Data Sharing for Healthcare And Research Survey
Year: 2015Kim, Joseph, and Ohno-Machado created the California Consumers’ Views of Data Sharing for Healthcare And Research Survey to assess technology use, opinions about electronic health records and reses
Research Population: Adults -
Genetic Genealogy Experiences Survey
Year: 2022Guerrini and colleagues designed the Genetic Genealogy Experiences Survey to gather information about the experiences of users of genetic relative-finder services offered by direct-to-consumer gene
Research Population: AdultsContact: [email protected] -
How Does Genetic Ancestry Testing Affect Perceptions of Race? Conjoint Survey Instrument
Year: 2022The Conjoint Survey Instrument is a survey instrument developed for the study “How Does Genetic Ancestry Testing Affect Perceptions of Race?” The study explores how respondents make racial classifi
Research Population: AdultsContact: [email protected] -
The Parental Personal Utility Scale (Parent PrU)
Year: 2024The Personal Utility Scale (PrU) asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to 7 (extremely useful).
Research Population: Adults, ParentsValidation(s):Turbitt, E., Kohler, J. N., Brothers, K. B., Outram, S. M., Rini, C., Sahin-Hodoglugil, N., Leo, M. C., & Biesecker, B. B. (2024) The Parent PrU: A measure to assess personal utility of pediatric genomic results. Genetics in Medicine, 16(1), Article 100994.
Contact: [email protected] -
Hierarchical Mapping Technique
Year: 1986The Hierarchical Mapping Technique, best described in the measures section of the validation included here, enables the collection of information about social network structure using a concentric…
Research Population: AdultsValidation(s):Antonucci, T. C., Ajrouch, K. J., & Webster, N. J. (2019). Convoys of social relations: Cohort similarities and differences over 25 years. Psychology and Aging, 34(8), 1158-1169.
Contact: [email protected]