Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
31 - 40 of 72 Research Tools
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Manual for Deliberative Focus Group Discussions (dFGDs) on Feedback of Individual Findings in Genomic Research among Lay Individuals who have Participated in Genomics Research
Year: 2019The Manual for Deliberative Focus Group Discussions (dFGDs) on Feedback of Individual Findings in Genomic Research was originally developed for use among adults and adolescents enrolled in genomics
Research Population: AdultsContact: [email protected] -
General Population and Patient Survey, Attitudes about the Ethics of Research on Medical Practices (RoMP)
Year: 2017This self-administered, web-based survey using an experimental between-group design to compare the effects of four informational aids on respondents’ understanding of core aspects of research on me
Research Population: AdultsContact: [email protected] -
PRIM&R Member Survey, Attitudes about the Ethics of Research on Medical Practices (RoMP)
Year: 2016The PRIM&R Member Survey was used in the ROMP study to elicit the perspectives of a random selection of human subjects research professionals from the Public Responsibility in Medicine and Rese
Research Population: AdultsContact: [email protected] -
Survey Instrument, Attitudes about the Ethics of Research on Medical Practices (RoMP)
Year: 2015The survey begins with questions about attitudes toward research, physicians, and health systems, interspersed with the 3 videos and questions to assess understanding of ROMP concepts.
Research Population: AdultsContact: [email protected] -
CSER Phase 2 Organizational Readiness to Change Assessment
Year: 2018The CSER Organizational Readiness to Change Assessment measures the readiness of healthcare systems to implement clinical sequencing.
Research Population: Adults -
CSER Phase 1: Personalized Oncology Through High-throughput Sequencing:
MI-ONCOSEQ Study ProtocolYear: 2015The Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) (formerly known as “Personalized Medicine Based on Molecular Profiling of Patients wit
Research Population: Adults -
Clinical Broad Data Sharing Consent Brochure, Clinical Genome Resource (ClinGen)
Year: 2017This is a printable version of the information from the Clinical Broad Data Sharing Consent Video (see this database).
Research Population: AdultsContact: [email protected] -
Physician Attitudes Toward Pharmacogenomics Pre- and Post-test Survey
Year: 2019A pre- and post-test questionnaire that measures changes in the knowledge and attitudes of physicians who have been administered pharmacogenetic testing is available in the supporting information s
Research Population: PhysiciansContact: [email protected] -
Genomcis Knowledge and Attitudes Toward Public Health Genomics, Survey for Public Health Professionals
Year: 2020This survey that measures genomics knowledge and attitudes toward the role of public health professionals in implementing public health genomics for public health professionals.
Research Population: Public Health ProfessionalsContact: [email protected] -
Influences on Precision Medicine Knowledge and Attitudes (Survey)
Year: 2020This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their attit
Research Population: AdultsContact: [email protected]