Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
61 - 70 of 104 Research Tools
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Genomic Results Educational Video for Adolescents
Year: 2019This 17 minute video provides adolescents with information on the meaning, limitations, and potential benefits and risks of receiving positive and negative genomic test results.
Research Population: AdolescentsContact: [email protected] -
Provider Perceptions of Patient-Generated Family Health Histories Survey
Year: 2009This survey was designed to elicit responses from providers’ regarding their experiences with and perceptions about patient-generated family histories.
Research Population: PhysiciansContact: [email protected] -
Attitudes of Parents of Sickle Cell Anemia (SCA) Affected Children Toward Prenatal Diagnosis of SCA Survey
Year: 2011Wonkam and colleagues designed this survey to gather information about how Cameroonian parents with SCA-affected children feel towards prenatal diagnosis and termination of an affected pregnancy.
Research Population: ParentsContact: [email protected] -
Genetic Genealogy Experiences Survey
Year: 2022Guerrini and colleagues designed the Genetic Genealogy Experiences Survey to gather information about the experiences of users of genetic relative-finder services offered by direct-to-consumer gene
Research Population: AdultsContact: [email protected] -
Intro to Consent Video for American Indian and Alaska Native Participants, All of Us Research Program
Year: 2018This 28 second video for American Indian and Alaska Native participants briefly introducs the concept of consent.
Research Population: AdultsContact: [email protected] -
Intro to Consent Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
Year: 2018This 28 second video for American Indian and Alaska Native participants briefly introducs the concept of consent.
Research Population: AdultsContact: [email protected] -
Basic Information Video for American Indian and Alaska Native Participants, All of Us Research Program
Year: 2018This 22 second video for American Indian and Alaska Native participants explains the required contact information and the efforts the All of Us Research Program (All of Us) will undertake to find a
Research Population: AdultsContact: [email protected] -
Basic Information Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
Year: 2018This 22 second video for American Indian and Alaska Native participants explains the required contact information and the efforts the All of Us Research Program (All of Us) will undertake to find a
Research Population: AdultsContact: [email protected] -
Health Information Video for American Indian and Alaska Native Participants, All of Us Research Program
Year: 2018This 30 second video was created for American Indian and Alaska Native participants of the All of Us Research Program (All of Us).
Research Population: AdultsContact: [email protected] -
Health Information Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
Year: 2018This 30 second video was created for American Indian and Alaska Native participants of the All of Us Research Program (All of Us).
Research Population: AdultsContact: [email protected]