Additional Resources

The 2020 Public Attitudes Toward Genetics & Genomics Research Literature and Polling Review Report was produced by Jameson Communications for the American Society of Human Genetics (ASHG) to inform ASHG’s public education and engagement work and serve the broader field.

The LawSeq℠ team, overseen by co-principal investigators Susan Wolf, JD, Ellen Wright Clayton, MD, JD, and Frances Lawrenz, PhD, has curated this database of articles from journals and professional society publications that are useful for understanding genomics law.

The Statement Archive of the American Society of Human Genetics is a record of advocacy work by the organization for the purpose of promoting evidence based policies that benefit science, personal and public health, and society. The archive includes analyses of emerging policy issues, comments on pending legislation, and correspondence with legislators.

Position Statements of National Society of Genetic Counselors (NSGC) reflect concrete applications of the Society's Code of Ethics and require a majority vote by the NSGC Board of Directors.

The Advocacy Committee of the American College of Medical Genetics and Genomics (ACMG), chaired by Sheila Dobin, releases policy statements to promote the responsible application of genomics in medicine.

The Public and Professional Policy Committee (PPPC) of the European Society of Human Genetics (ESHG), chaired by Francesca Forzano, discusses and issues statements on the responsible translation of technological developments in human genetics.

This Joint Position Statement from the International Society for Prenatal Diagnosis (ISPD), the Society for Maternal Fetal Medicine (SMFM), and the Perinatal Quality Foundation (PQF) includes a consensus opinion and points to consider on the use of genome‐wide sequencing for fetal diagnosis in clinical and research settings.

This position statement, issued by the ASRM Ethics in Embryo Research Task Force and the ASRM Ethics Committee and published in 2019, addresses ethical considerations in embryo research.

This policy statement, released in March 2013 and reaffirmed in June 2018, contains recommendations on the genetic testing and screening of children developed collaboratively the American Academy of Pediatrics and the American College of Medical Genetics and Genomics.

This technical report, authored by Laine Friedman Ross, Howard M. Saal, Karen L. David, Rebecca R. Anderson, the American Academy of Pediatrics, and the American College of Medical Genetics and Genomics, outlines the ethical justification and cites empirical data in support of the proposed policy recommendations of the AAP and ACMG regarding genetic testing in children.