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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

711 - 720 of 799 Additional Resources

  • Allows parents or legal guardians of students enrolled in public schools to opt-out of sharing their child's personal information with the federal government and other agencies and private contractors. Personal information includes a DNA sequence. 1/31/2017 Died in Committee. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Mississippi
    • genetic privacy

  • Prohibits health plans from denying coverage for a preexisting condition unless certain conditions are met. Genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. 1/30/2018 Died in Committee. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Mississippi
    • health insurance nondiscrimination

  • Allows parents to opt out of the collection, tracking, housing, reporting, selling, or sharing with any party outside of the local school district, of noneducational-related information on a child or his or her family, including a DNA sequence. 1/30/2018 Died in Committee. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Mississippi
    • genetic privacy

  • Requires group or individual policies, contracts or certificates of health insurance issued or renewed to cover comprehensive ultrasound screening of an entire breast or breasts if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. 1/30/2018 Died in committee. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Mississippi
    • health insurance coverage
    • genetic testing

  • Enacts the Consumer Privacy Act. Provides certain rights to consumers such as the right to know the categories and specific pieces of personal information collected and the right to require a business to delete personal information. Personal information is defined to include biometric information such as DNA sequences. 02/05 (H) Died In Committee Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Mississippi
    • genetic privacy

  • Allows parents to request exemption of their children from certain activities during a school year, including the collection, tracking, housing, reporting, selling, or sharing with any party outside of the local school district, of noneducational-related information on my child or my family, including, but not limited to DNA sequences. 02/05 (S) Died In Committee. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Mississippi

  • This bill, as substituted by the Senate, prohibits the treatment of genetic information as a preexisting condition in the absence of a diagnosis and prevents the establishment of rules for eligibility or continued eligibility on the basis of a health status-related factor, including genetic information, in health insurance. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Missouri
    • health insurance nondiscrimination

  • This bill authorizes designated administrators to take action if it is determined that a person has engaged, is engaging in, or has taken a substantial step toward engaging in an act of discrimination prohibited under the state genetic nondiscrimination laws that applies to employers. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Missouri
    • employment nondiscrimination

  • This bill prohibits individual, small group and large group health insurers from treating genetic information as a pre-existing condition in the absence of a diagnosis. The bill also prohibits health insurers from establishing rules for eligibility based on genetic information. Approved by the Governor June 1, 2007. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Missouri
    • health insurance nondiscrimination

  • Unless otherwise directed under this section, a biological specimen may be released for purposes of anonymous scientific study. At the time of newborn screening specimen collection, the parent or legal guardian of the child from whom a biological specimen was obtained may direct the department to: (1) return the specimen after all tests have been performed; (2) destroy the specimen; or (3) store a specimen but do not release is for anonymous study. Signed by the Governor July 13, 2007. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Missouri
    • Newborn screening