Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

21 - 30 of 1002

Requires that all research proposed to be conducted using personally identifiable information in the newborn screening system or requiring contact with affected individuals shall be reviewed and approved in advance by the health commissioner. 6/23/2017 Signed by the Governor. Effective 10/1/2017. Bill Status: Enacted

  • state bill
  • bill
  • Connecticut
  • Newborn screening
  • health commissioner
  • bill status enacted

Requires a study of the link between the abnormal genes associated with breast and ovarian cancers and the nerve death associated with Alzheimer's disease to improve diagnosis, risk assessment and treatment of disease. Bill Status: Died

  • state bill
  • bill
  • Connecticut
  • abnormal genes
  • breast cancer
  • Cancer
  • ovarian cancer
  • nerve death
  • Alzheimer's Disease
  • genetic predisposition

Requires individual and group health insurers to provide coverage for breast cancer chemoprevention counseling, risk assessment, genetic testing and counseling for any woman who is at increased risk for breast cancer due to family history, prior personal history of breast cancer, positive genetic testing or other indications as determined by a health care provider. Bill Status: Died

  • state bill
  • bill
  • Connecticut
  • mandatory coverage
  • breast cancer
  • genetic testing
  • breast cancer chemoprevention counseling
  • Genetic Risk
  • genetic counseling
  • bill status died

Creates a health data collaborative working group to examine and make recommendations regarding (1) precision medicine and personalized health; (2) economic growth initiatives for businesses working in certain scientific areas; (3) health data access, privacy and security initiatives; and (4) platforms for collecting health data in order to understand the interplay between genetic, behavioral and environmental factors in the incidence of disease or illness. 6/30/2017 Signed by the Governor. Effective immediately. Bill Status: Enacted

  • state bill
  • bill
  • Connecticut
  • precision medicine
  • Privacy
  • genetic factors
  • genetic disease
  • bill status enacted

The Commissioner of Social Services must provide Medicaid coverage to the extent permissible under federal law for pharmacogenomics tests determined to be medically necessary. The commissioner may not require prior authorization for medically necessary pharmacogenomics tests for persons being treated for (1) behavioral disorders, (2) psychiatry disorders, (3) cardiovascular disorders, and (4) chronic pain. Died. Bill Status: Died

  • state bill
  • bill
  • Connecticut
  • Commissioner of Social Services
  • Medicaid coverage
  • pharmacogenomics
  • pharmacogenomics tests
  • behavioral disorders
  • psychiatry disorder
  • cardiovascular disorders

Prohibits a consumer genetic-testing company from sharing any genetic data or other personally identifiable information about a consumer with any health or life insurance company. Died. Bill Status: Died

  • state bill
  • bill
  • Connecticut
  • consumer genetic-testing company
  • genetic testing
  • genetic data
  • bill status died
  • Privacy

Prohibits life insurance companies from requiring genetic testing or using genetic information in connection with life insurance policies and annuity contracts. Died. Bill Status: Died

  • state bill
  • bill
  • Connecticut
  • life insurance
  • genetic testing
  • genetic information
  • life insurance policies
  • bill status died

Creates a task for concerning consumer privacy. The introduced version of the bill was amended to create a task force rather than set forth certain requirements pertaining to the privacy of personal information such as DNA. Signed by the Governor 7/9/2019. Bill Status: Enacted

  • state bill
  • bill
  • Connecticut
  • consumer privacy
  • Privacy
  • task force
  • DNA
  • bill status enacted

Establishes a task force to require a study of the link between the abnormal genes associated with breast and ovarian cancers and the nerve death associated with Alzheimer's disease to improve diagnosis, risk assessment and treatment of such disease. Died. Bill Status: Died

  • state bill
  • bill
  • Connecticut
  • task force
  • abnormal genes
  • breast cancer
  • ovarian cancer
  • nerve death
  • Alzheimer's Disease
  • Risk Assessment

Requires businesses to disclose the proposed use of any personal information and to give consumers the right to discover what personal information the business possesses. Consumers may opt out of the sale of such information. Personal information is defined to include biometric information such as DNA which can be used to identify an individual. Died. Bill Status: Died

  • state bill
  • bill
  • Connecticut
  • consumer protection
  • biometric information
  • bill status died
  • Privacy