Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

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The bill establishes the right of parents to consent in writing before any record of the minor child's blood or deoxyribonucleic acid is created, stored or shared, with some exceptions such as for newborn screening. Bill Status: Enacted and signed on May 10, 2010.

  • bill
  • parent consent
  • consent writing
  • Parents
  • Child
  • Records
  • Newborn screening
  • Arizona
  • bill status enacted
  • Privacy

This bill amends state law pertaining to genetic testing. New provisions include that a person may not order a genetic test without the informed consent of the person being tested. Bill Status: Enacted and signed on March 17, 2016.

  • bill
  • amendment
  • genetic testing
  • Consent
  • Informed Consent
  • Arizona
  • bill status enacted
  • Privacy
  • healthcare provider's order

This bill amends the statute pertaining to laboratory testing without a healthcare provider's order. It defines laboratory testing to include pharmacogenetic testing. Bill Status: Died

  • bill
  • amendment
  • statute
  • laboratory testing
  • healthcare provider
  • provider's order
  • pharmacogenetic testing
  • Arizona
  • bill status died
  • healthcare provider's order

This bill prohibits schools and school service providers from collecting or possessing biometric information of elementary or secondary school students unless the school service provider: (1) develops a written policy for the collection, retention, disclosure and destruction of biometric information; and (2) obtains a written release to collect biometric information. Sets forth protections for biometric information, if collected. Biometric information is defined as information derived from any biometric identifier used to identify an individual. Bill Status: Died

  • bill
  • school
  • school service providers
  • biometric information
  • Disclosure
  • Collection
  • Arizona
  • bill status died
  • Privacy

This bill allows the release of genetic testing and information derived from genetic testing to the following, if the necessary requirements are met: an individual or entity that provides services to a health care provider or clinical laboratory, a statewide health information exchange, the health insurance carrier of the person tested, a nationally recognized accreditation organization, a health professional licensing board in the state, and an entity that is responsible for the payment of a health care provider charges. Bill Status: Died

  • bill
  • genetic testing
  • genetic information
  • health care provider
  • clinical laboratory
  • health information exchange
  • health insurance carrier
  • professional licensing
  • accreditation
  • Arizona

This bill requires that genetic testing information be released only as authorized by state or federal law, including the Health Insurance Portability and Accountability Act privacy standards. Permits the release of genetic testing information to a health care provider who is providing care to the person tested and the health care provider's agent or employee. Allows a legal representative of a clinical laboratory that is in possession of the medical record to receive the genetic test and information derived from the genetic test when the laboratory is obtaining legal advice. Allows a licensed pathologist to order and perform genetic testing for a patient and receive the results. Bill Status: Enacted and signed on May 22, 2019.

  • bill
  • genetic testing
  • genetic information
  • Health Insurance Portability and Accountability Act
  • Privacy
  • health care provider
  • clinical laboratory
  • medical record
  • license
  • Arizona

This bill prohibits placing an inmate in isolated confinement based on certain factors, including genetic information. Bill Status: Died

  • bill
  • inmate
  • genetic information
  • isolated confinement
  • Arizona
  • bill status died

This bill establishes requirements for controllers upon the receipt of a verified request from consumers to exercise their rights with respect to the processing of personal data, including genetic data for the purpose of uniquely identifying a person. Bill Status: Died

  • bill
  • data controller
  • data processor
  • personal data
  • genetic data
  • identification
  • Arizona
  • bill status died
  • Privacy

This bill amends the state genetic privacy law. Declares genetic testing and the information derived from it, whether in the possession of a public or private entity, to be the exclusive private property of the person tested. Bill Status: Died

  • bill
  • amendment
  • genetic privacy law
  • genetic testing
  • genetic information
  • private property
  • Arizona
  • bill status died
  • Privacy

This bill prohibits placing an inmate in isolated confinement based on certain factors, including genetic information. Bill Status: Died.

  • bill
  • inmate
  • confinement
  • genetic information
  • Arizona
  • bill status died