Gail E. Henderson

Ph.D., M.A.
Professor of Social Medicine in the School of Medicine and adjunct professor of Sociology at the University of North Carolina at Chapel Hill

Institution(s):

University of North Carolina at Chapel Hill
Visit Institutional Profile

Methods

Mixed Methods
Qualitative Methods
Survey Research

Disciplines

Sociology
Bioethics
Social Medicine

Areas of Expertise

Decision-making processes for early phase clinical research participants
Genomic screening for healthy populations
Ethical and organizational issues in biobanking

Publications

Parents’ perceptions of personal utility of exome sequencing results
Research participants’ perspectives on genotypedriven research recruitment
Returning negative results to individuals in a genomic screening program: lessons learned
Is enhancement the price of prevention in human gene editing?
Factors Influencing NCGENES research participants’ requests for non-medically actionable secondary findings
Distributive justice, diversity, and inclusion in precision medicine: What will success look like?
Clinical sequencing exploratory research consortium: Accelerating evidence-based practice of genomic medicine
Possibly positive or certainly uncertain?’: Participants’ responses to uncertain diagnostic results from exome sequencing
Grudging trust and the limits of trustworthy biorepository curation
Age and perceived risks and benefits of preventive genomic screening
Examining the cascade of participant attrition in a genomic medicine research study: Barriers and facilitators to achieving diversity
Navigating the research–clinical interface in genomic medicine: Analysis from the CSER Consortium
Is there evidence that we should screen the general population for lynch syndrome with genetic testing? A systematic review
"Forward-Thinking" in U.S. biobanking
Is ‘incidental finding’ the best term?: A study of patients’ preferences
With great (participant) rights comes great (researcher) responsibility
The promise and peril of genomic screening in the general population
Public comments on proposed regulatory reforms that would impact biospecimen research: The good, the bad, and the puzzling
Standardization as performative accountability in biobanking
How can psychological science inform research about genetic counseling for clinical genomic sequencing?
Biobanks containing clinical specimens: Defining characteristics, policies, and practices
Stewardship practices of U.S. biobanks
Why we should continue to worry about the therapeutic misconception
Characterizing biobank organizations in the U.S.: Results from a national survey
Neglected ethical issues in biobank management: Results from a U.S. study
Biobanks in the United States: How to identify an undefined and rapidly evolving population
Is informed consent broken?
“If I could in a small way help”: Motivations for and beliefs about sample donation for genetic research
Parents’ online portrayals of pediatric treatment and research options
Asking the right questions: Views on genetic variation research among black and white research participants
Introducing social and ethical perspectives on gene—environment research
Great expectations: Views of genetic research participants regarding current and future genetic studies
Studying genetic research participants: Lessons from the ‘Learning About Research in North Carolina’ study
Consent forms and the therapeutic misconception: The example of gene transfer research
Uncertain benefit: Investigators’ views and communications in early phase gene transfer trials
Confidentiality: More than a linkage file and a locked drawer
Assessing benefits in clinical research: Why diversity in benefit assessment can be risky
The invisible hand in clinical Research: The study coordinator’s critical role in human subjects protection
Studying benefit in gene transfer research
Public health genomics, biobanking, and ethics
Confidentiality: More than a linkage file and a locked drawer
The promise and reality of public engagement in the governance of human genome editing research

Return to Search Results

Social

Get in Touch

Related Scholars

  • Julie Cakici, PhD, RN

    Health Science Policy Analyst [C]

    Institution: NIH’s All of Us Research Program

    AREAS OF EXPERTISE

    Consent for Genomic Testing, Infant, Newborn, Pediatric bioethics, ELSI Genomics, Ethical and organizational issues in biobanking

  • Karen M. Meagher, Ph.D.

    Assistant Professor

    Institution: Mayo Clinic

    AREAS OF EXPERTISE

    Ethical and organizational issues in biobanking, Public health pathogen genomics, precision public health, Antimicrobial resistance, Community Engagement

  • Hannah E. Wand, MS, CGC

    Program Director, Preventive Genomics

    Institution: Stanford Medicine

    AREAS OF EXPERTISE

    Genomic screening for healthy populations, Polygenic scores, race and genetics, public health genetics, cardiovascular disorder risk

  • Amy C. Sturm, MS, MS, CGC

    Director, Population Health Genomics

    Institution: 23andMe

    AREAS OF EXPERTISE

    Genetic Counseling, genetic counseling research, Genomic screening for healthy populations, Cardiovascular Genetics, Direct to Consumer Genetic Testing

  • Adam H. Buchanan, MS, MPH, CGC

    Associate Professor and Chair, Department of Genomic Health

    Institution: Geisinger

    AREAS OF EXPERTISE

    Genetic Counseling, Genomic screening for healthy populations

  • Pascal Borry, PhD

    Professor of Bioethics

    Institution: KU Leuven

    AREAS OF EXPERTISE

    Direct to Consumer Genetic Testing, Ethical and organizational issues in biobanking, expanded carrier screening, Non-invasive prenatal screening - NIPT, Genetic Testing
+ Search results