Kara Ayers

Don Bailey, Ph.D.

Distinguished Fellow

Institution: RTI International

AREAS OF EXPERTISE

Newborn screening, Disability studies, Families

Gretchen A. Case, PhD, MA

Associate Professor (lecturer)

Institution: University of Utah School of Medicine

AREAS OF EXPERTISE

arts-based methods, Medical humanities, Arts, Disability studies, Performance studies

Holly K. Tabor, PhD

Associate Professor

Institution: Stanford University

AREAS OF EXPERTISE

ELSI, Rare Diseases, return of results, Disability rights, Clinical Ethics

Helen J. Kim, MA, MS, CGC

Genetic Counselor & Public Engagement Associate

Institution: pgEd at Harvard Medical School

AREAS OF EXPERTISE

race and genetics, cancer genetics, disability and reproductive rights, Genetic Testing, Access to genetic screening and therapies

Joel Michael Reynolds, PhD, MA

Assistant Professor of Philosophy and Disability Studies

Institution: Georgetown University

AREAS OF EXPERTISE

Bioethics, Philosophy, Disability studies, healthcare justice, Health Humanities

Nicola Sugden, PhD

Visiting Fellow / Associate Historian

Institution: National Human Genome Research Institute

AREAS OF EXPERTISE

Childhood, Psychiatry, Psychology, Disability studies, Science and technology studies

Katherine McDonald, PhD

Associate Dean of Research; Professor

Institution: Syracuse University

AREAS OF EXPERTISE

Developmental Disabilities, Disability ethics, community based participatory research, IRB (Institutional Review Board), IRBs

Rebecca Mueller, LCGC, PhD

Fellow in Ethical, Legal, Social Implications of Genetics and Genomics

Institution: University of Pennsylvania

AREAS OF EXPERTISE

Qualitative research , Genetic Counseling, Disability ethics, Cystic Fibrosis, Uncertainty

Benjamin S Wilfond, MD

Professor

Institution: Seattle Childrens Research Institute

AREAS OF EXPERTISE

Research Ethics, Trisomy, Disability ethics, Cystic Fibrosis, Informed Consent