NIH Sep 1, 1995 | PN1

Outcomes for Education and Counseling for HNPCC Testing

Principal Investigator(s): Hadley, Don

Institution: National Center for Human Genome Research and National Cancer Institute, NIH

FOA Number: N/A

Abstract

Individuals with colon cancer and/or polyps and their first degree relatives will be offered gene testing for Hereditary Non-Polyposis Colorectal Cancer. This study proposes to evaluate psychological and behavioral aspects of their decision-making and the outcomes of the testing process. Knowledge and expectations will be assessed initially, followed by pre-test psychological assessment and an education and counseling session. Participants will be presented the choice of whether or not to undergo gene testing at a point when mutational analysis becomes accurate and reliable. Notification of test results will occur in person along with discussion of available surveillance options. Follow-up counseling evaluation and support will be provided. Psychological and behavioral outcomes will be reassessed at multiple time points following disclosure. (Funded by NCHGR Intramural Program. Member of CGSC)

FUNDING AGENCY:

Funder:
NIH

Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE

Funding Type:
PN1

Project Number:
PN1HG950165

Start Date:
Sep 1, 1995

End Date:
Sep 1, 1998

PROJECT TERMS:

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