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Ethical Challenges in Obtaining Informed Consent for Genetic/Genomic Research
Obtaining informed consent (IC) for genetic/genomic research is complicated because most of the ethical issues associated with genetic research are considerations to be disclosed by researchers and…
Collection
Abortion and the Genetic Counselor: The Impact of Restrictive Legislation on Genetic Counseling Practice
The first class of genetic counselors graduated with an M.A. from the Sarah Lawrence College in 1971; less than two years later, the Supreme Court decision in Roe v. Wade legalized abortion in all…
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Publication
Three decades of ethical, legal, and social implications research: Looking back to chart a path forward
More than thirty years ago in the United States, the National Center for Human Genome Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human Genome Project (HGP),…
News & Events
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Webinar
Legal Challenges to Newborn Screening Research
Join the discussion with panelists Eric Hendricks, JD and Aaron Goldenberg, PhD moderated by Natasha Bonhomme.
To continue the conversation please join fellow audience members for an informal…
Spotlight
Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group
Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…
Impact of SCOTUS's Dobbs Decision on Prenatal Genomics Research and Practice
The upcoming Supreme Court’s decision in Dobbs v. Jackson Women’s Health is likely to change the landscape of clinical practice in prenatal genomic medicine. With the prospect of overturning Roe v.…
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Upcoming Funding Opportunity Announcements
Education Activity
NHGRI Short Courses for Genomics-Related Research Education (R25 Clinical Trial Not Allowed)
NIH
Expiration Date: Dec 24, 2022
Career Development Award
NIH Pathway to Independence Award (Parent K99/R00 Independent Clinical Trial Not Allowed)
NIH
Expiration Date: May 8, 2023
Career Development Award
Maximizing Opportunities for Scientific and Academic Independent Careers (MOSAIC) Postdoctoral Career Transition Award to Promote Diversity (K99/R00 Independent Clinical Trial Not Allowed)
NIH
Expiration Date: Sep 8, 2024