Research Tools

This questionnaire enables research participants to review categories of incidental findings that might be revealed during an exome test and select the categories of results that they would like to have returned to them/ become a part of their medical record.

This questionnaire for parents was developed for the BASIC3 study. It collects demographic and health information, measures numeracy and genetic literacy, and records parent preferences for making decisions about the care of their child.

Conjin and colleagues created this questionnaire to assess genetic knowledge, the perceived severity of MPS III (Sanfilippo disease), perceived risk, and attitudes toward expanded carrier screening (ECS). The educational text, video, and questionnaire used in this study by Conjin and colleagues were originally in Dutch but the tools were translated to English for publication.

Carver and colleagues developed the Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) questionnaire to assess college students' knowledge of genetics, including gene-environment interaction. The questionnaire also explores opinions and beliefs regarding genetic determinism and genetic testing and other technologies.

Aikenhead and Ryan developed the Views on Science—Technology—Society (VOSTS) instrument to assess high school students' views and preconceptions on the epistemology of science. The instrument consists of an empirically derived pool of 114 multiple-choice items.