ELSI-focused databases and summarized
scholarship to do more, faster.
Policy Resources from academic centers, professional organizations, and the NIH.
Find out where ELSI researchers publish, access key bioethics websites, review state bills and laws related to genomics, visit the Centers for Excellence in ELSI Research, and more.
“It seems like COVID-19 now is the only disease present on Earth”: Living with a rare or undiagnosed disease during the COVID-19 pandemic
Halley and colleagues call for urgent action and attention to the serious challenges posed by the COVID-19 pandemic for people with rare or undiagnosed diseases.
Greely outlines ethical and legal issues related to the creation of proxies for living human brains that could merit the same consideration as living humans.
Doerr and colleagues find fewer correct responses on questions about privacy and terms unfamiliar to very low health literacy participants in two analyses of the All of Us eConsent process.