ELSI-focused databases and summarized
scholarship to do more, faster.
Policy Resources from academic centers, professional organizations, and the NIH.
Find out where ELSI researchers publish, access key bioethics websites, review state bills and laws related to genomics, visit the Centers for Excellence in ELSI Research, and more.
Smith and colleagues call for increased precision in the definition, usage, and approach to measurement of utility in multidisciplinary evaluations of the clinical integration of genomic sequencing.
In the absence of an international treaty, Sherkow, Adashi, and Cohen consider patents—perhaps with ethical restrictions on the use of the technology as a condition of licensure—as a potential governance tool.
Ram, Murphy, and Suter argue that the Maryland law enacted in May 2021 to regulate the law enforcement use of genetic data provides a model set of safeguards that balance public safety, privacy, and criminal justice.