Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

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Congress.gov, originally known as the THOMAS online legislative information system, is a searchable online database of US legislation.

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The LawSeq℠ database of statutes, agency regulations, and case law decisions issued by US federal authorities relevant to genomics is compiled by a team of researchers with legal, ethics, scientific, clinical, laboratory, informatics, and industry expertise at the University of Minnesota with funding from the National Human Genome Research Institute (NHGRI) and National Cancer Institute (NCI), National Institutes of Health (NIH).

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The Genome Statute and Legislation Database, created by the National Human Genome Research Institute, includes state statutes and bills on genomics issues (such as employment discrimination, health insurance coverage, and privacy) introduced during the 2007-2020 U.S. state legislative sessions.

  • statute
  • bill
  • legislation
  • insurance
  • Discrimination
  • Privacy
  • Regulation

The LawSeq℠ database of state statutes, agency regulations, and case law decisions relevant to genomics is compiled by a team of researchers with legal, ethics, scientific, clinical, laboratory, informatics, and industry expertise at the University of Minnesota with funding from the National Human Genome Research Institute (NHGRI) and National Cancer Institute (NCI), National Institutes of Health (NIH).

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  • state statutes
  • agency regulations
  • case law
  • state law
  • LawSeq
  • genomic laws

This bill creates the Genetic Information Privacy Act. The bill establishes procedures for obtaining, disclosing and storing genetic information as well as penalties for unlawful disclosure. Bill Status: Died

  • Privacy
  • genetic information privacy act
  • penalties
  • Disclosure
  • genetic information
  • bill
  • Alabama
  • bill status died

This bill prohibits state agencies, district boards of education, or pre K-12 educational institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits information about the student or the student's family concerning biometric records, which is defined to include DNA sequences. Bill Status: Died

  • solicit
  • biometric records
  • survey
  • bill
  • DNA sequencing
  • genetic information
  • school
  • state agency
  • Education
  • administration

This bill prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Bill Status: Died

  • state agencies
  • local education agencies
  • Education
  • administration
  • survey
  • bill
  • assessment
  • soliciting
  • genetic information
  • biometric record

This bill prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Bill Status: Died

  • state agencies
  • local education agencies
  • Education
  • administration
  • survey
  • bill
  • assessment
  • soliciting
  • genetic information
  • biometric record

This bill prohibits health benefit plans, life insurers, and long term care insurers from (1) using an individual's genetic information to deny him or her insurance or to establish differentials in premium rates, or (2) requiring or soliciting genetic information, using genetic test results, or considering an individual's decisions or actions relating to genetic testing in any manner for insurance purposes. Bill Status: Died

  • health benefit plans
  • bill
  • life insurers
  • long term care
  • insurers
  • genetic information
  • insurance
  • premium rates
  • genetic testing
  • Alabama

This statute states that health and disability insurers may not deny applicants insurance coverage because of a diagnosis of sickle cell anemia.

Note: In order to navigate to 27-5-13 at the given link, complete the following steps: 1) Click on "Title 27" in the left navigation bar. 2) Click on "CHAPTER 5." 3) Click on "Section 27-5-13."

  • statute
  • insurance
  • insurance coverage
  • Sickle Cell Anemia
  • Diagnosis
  • disability insurance
  • health insurance
  • Alabama
  • health insurance nondiscrimination