Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

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ICPSR is an international consortium of more than 750 academic institutions and research organizations that provides leadership and training in data access, curation, and methods of analysis for the social science research community. It maintains a data archive of more than 250,000 files of social and behavioral science research data.

  • data archive
  • Social Sciences
  • interntional consurtium
  • research organizations
  • data access
  • University of Michigan
  • ICPSR

The Qualitative Data Repository (QDR) is a dedicated archive for storing and sharing digital data collected via qualitative and multi-method research in the social sciences (with an initial focus on political science). QDR, funded by the National Science Foundation and hosted by the Center for Qualitative and Multi-Method Inquiry at Syracuse University, provides search tools, collects links to U.S. and international data archives, offers support for drafting data management plans, and accepts data deposits.

  • qualitative data
  • data repository
  • QDR
  • digital data
  • data archive
  • Qualitative Research
  • multi-method research
  • Social Sciences
  • international archives
  • political science

The CDC Public Health Genomics and Precision Health Knowledge Base (PHGKB) is an online, continuously updated, searchable database of published scientific literature, CDC resources, and other materials curated by CDC staff that address the translation of genomics and precision health discoveries into improved health care and disease prevention.

  • CDC
  • PHGKB
  • Genomics
  • precision health
  • database
  • disease prevention
  • public health genomics

The DNA Patent Database, curated by Duke Institute for Genome Science and Policy and the Kennedy Institute of Ethics at Georgetown University, is a searchable collection of DNA-based patents issued by the United States Patent and Trademark Office (USPTO) from 1971 to 2012 and patent applications from 2001 - 2012.

  • patent
  • Policy
  • USPTO
  • genomic
  • trademark
  • biotechnology
  • DNA-based patent
  • patent coding
  • Bob Cook-Deegan

The ELSI Publications and Products Database is a collection of journal articles, books, and other materials that were produced with funding from the ELSI Research Program at the National Human Genome Research Institute.

  • ELSI
  • publication database
  • ELSI Research Program
  • Education
  • Research
  • NHGRI grants
  • journal article
  • book
  • newsletter

An open-access repository of FAQs that accompany genomic research in social and behavioral genomics. This resource was developed in collaboration with researchers at the Stanford University Center for Biomedical Ethics (Dr. Daphne O. Martschenko); Columbia University and The Hastings Center (Dr. Lucas J. Matthews); the Stanford University Graduate School of Education (Dr. Ben W. Domingue); and Princeton University, Department of Sociology (Dr. Sam Trejo).

  • Behavioral genomics
  • Communication
  • responsible research conduct
  • Behavioral Research