Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

81 - 90 of 1004

Requires The Task Force on Universal Health Care to develop recommendations to the Legislative Assembly for the Health Care for All Oregon Plan. Recommendations must consider certain values, including access to a distribution of health care resources and services. Specified factors including genetic conditions may not create any barriers to health care nor disparities in health outcomes due to access to care. Governor signed on 7/23/19. Effective immediately. Bill Status: Enacted

  • state bill
  • bill
  • bill status enacted
  • Oregon

The genetic privacy statutes define the rights of individuals whose genetic information is collected, retained or disclosed and the rights of the individuals blood relatives; define the circumstances under which an individual may be subjected to genetic testing; define the circumstances under which an individuals genetic information may be collected, retained or disclosed; protect against discrimination by an insurer or employer based upon an individuals genetic characteristics; and define the circumstances under which a DNA sample or genetic information may be used for research.

  • state statute
  • Oregon
  • genetic privacy
  • genetic testing

Health benefit plans that apply pre-existing condition exclusions may not do so based on genetic information in the absence of a diagnosis.

  • state statute
  • Oregon
  • health insurance nondiscrimination

If a person asks an applicant for insurance to take a genetic test in connection with an application for insurance, the use of the test must be revealed to the person tested and informed consent to conduct testing is required. Favorable genetic information may not be used to induce the purchase of insurance. Genetic information may not be used to reject, deny, limit, cancel, refuse to renew, increase the rates of, affect the terms and conditions of or otherwise affect any policy for hospital or medical expenses, and the genetic information of a persons blood relative may not be used to reject, deny, limit, cancel, refuse to renew, increase the rates of, affect the terms and conditions of or otherwise affect any policy of insurance.

  • state statute
  • Oregon
  • health insurance nondiscrimination

It is an unlawful employment practice for an employer to seek to obtain, to obtain or to use genetic information of an employee or a prospective employee or their blood relatives to distinguish between or discriminate against or restrict any right or benefit otherwise due or available to an employee or a prospective employee. A person whose rights have been violated may bring a civil action.

  • state statute
  • Oregon
  • employment nondiscrimination

This bill adds genetic information to the Pennsylvania Human Relations Act. The bill prohibits discrimination because of genetic information by employers, employment agencies and labor organizations. Individuals whose rights are violated may file a complaint with the Human Relations Commission and maintain a right of action in the courts of the Commonwealth. Measure failed. Bill Status: Died

  • state bill
  • bill
  • bill status died
  • Pennsylvania
  • employment nondiscrimination

This bill requires health insurers to comply with federal acts, including the Genetic Information Nondiscrimination Act of 2008. The insurance commissioner may revoke, suspend or refuse the license of insurers who fail to comply, issue a cease and desist order, or impose penalties. Measure failed. Bill Status: Died

  • state bill
  • bill
  • bill status died
  • Pennsylvania
  • health insurance nondiscrimination

This bill adds genetic information to the Pennsylvania Human Relations Act. The bill prohibits discrimination because of genetic information by employers, employment agencies and labor organizations. Individuals whose rights are violated may file a complaint with the Human Relations Commission and maintain a right of action in the courts of the Commonwealth. Measure failed. Bill Status: Died

  • state bill
  • bill
  • bill status died
  • Pennsylvania
  • employment nondiscrimination

This bill adds genetic information to the Pennsylvania Human Relations Act. The bill prohibits discrimination because of genetic information by employers, employment agencies and labor organizations and public accommodation of housing and commercial property. Individuals whose rights are violated may file a complaint with the Human Relations Commission and maintain a right of action in the courts of the Commonwealth. Measure failed. Bill Status: Died

  • state bill
  • bill
  • bill status died
  • Pennsylvania
  • employment nondiscrimination

This bill prohibits any legal entity engaged in the business of insurance subject to the Insurance Company Law of 1921 from denying, limiting, canceling, refusing to renew or varying the premiums for an insurance policy on the basis of genetic information or the request or receipt of genetic services by an individuals family member. Insurers also may not request of require disclosure of genetic information; request or require an individual to reveal whether genetic information has been obtained; or disclose genetic information about an individual or family member without written consent. Harmed individuals have a civil cause of action against the insurer. Measure failed. Bill Status: Died

  • state bill
  • bill
  • bill status died
  • Pennsylvania
  • health insurance nondiscrimination