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Event
Working Towards Justice & Genetic Health Literacy in Clinical Genomics
Marginalized racial and ethnic communities have been the focus of increased attention by precision medicine researchers seeking to foster justice and promote health equity in clinical genomics. Low… -
Collection
Community Engagement in Genomic Research
Engaging with communities in biomedical and genomic research is increasingly seen as critical for navigating ethical considerations, and a necessary part of the scientific process. Why? Meaningful…- Community Engagement
- community-based participatory research
- Health Equity
- Biobanking
- Underrepresented Populations
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Event
Population Descriptors for Legacy Genomic Data: Challenges and Future Directions
Several National Institutes of Health (NIH) Institutes, Offices, and Centers* are partnering to host a two-day virtual workshop on May 28-29, 2024, to further explore the recommendations from the… -
Collection
Behavioral Genetics: From Science News to Political Preferences
Today, once marginal far-right political parties are supported by a growing proportion of the electorate. Some far-right figures insist that foreigners are and will always remain fundamentally…- Behavioral Genetics
- genetic essentialism
- Eugenics
- Narratives
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Collection
Ethical, Legal, and Social Implications of Generative AI (GenAI) in Healthcare
The co-evolution of computational processing power and neural network models has made revolutionary developments in generative artificial intelligence (GenAI) possible. One type of GenAI, large…- ELSI
- generative AI
- large language models
- bioethics
- data privacy
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Event
ASBH 26th Annual Conference
ASBH 26th Annual Conference What Does It Mean to be Human? As we watch the meteoric rise of artificial intelligence technology, we are confronted with increasingly complex moral… -
Event
ASHG Annual Meeting 2024
We are excited to bring the ASHG 2024 Annual Meeting to Denver, Colorado, from November 5-9. Over the course of 5 days, the meeting will cover a broad spectrum of topics including new technologies,… -
Collection
Patient Perspectives on Uncertainty in Genomic Medicine
All medical information is subject to uncertainty, but the practice of medical genetics is characterized by unique magnitudes and forms of uncertainty. In fact, for many patients, a “positive”…- variant of uncertain significance
- incidental finding
- patient experience
- clinical decision-making
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Collection
Establishing Gender-Affirming Genetic Counseling Services
Transgender (trans) describes an individual whose gender identity differs from the sex they were assigned at birth. In the U.S., approximately 2.6 million people (~1% of the population) identify as…- TGDI
- gender affirming care
- intersex
- transgender
- gender-diverse
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Screening Embryos for Psychiatric Conditions: Public Perspectives, Ethical and Social Issues
The number of genomic loci identified to be associated with psychiatric disorders have substantially increased over the last decade. Alongside developments in polygenic embryo screening (PES; or PGT-…- polygenic embyro screening
- Polygenic risk scores
- Psychiatry
- Reproductive Decision Making