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1 - 10 of 1822 Topics
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Publication
Data sharing and community-engaged research
ScienceSabatello and colleagues discuss areas of tension between the community-engaged research and data sharing movements including incentives and benefit sharing; group harm and power structures; and… -
Publication
How should communities be meaningfully engaged (if at all) when setting priorities for biomedical research? Perspectives from the biomedical research community
BMC Medical EthicsBorthwick, Evertsz, and Pratt find support for community engagement in biomedical research priority-setting, but no consensus on what ethical purpose it should serve or how it should be done. -
Grant Abstract
Engaging African Communities for the HapMap Project
The Haplotype Map (HapMap) Project is an international collaborative project to produce a haplotype map of the human genome. The HapMap is expected to be a key resource for more efficient genome-wide…- African
- biotechnology
- Clinical Research
- community health services
- culture
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Grant Abstract
Haplotype Mapping and U.S. Chinese Community Engagements (HAPMAP)
Some socially identifiable groups have historically perceived genetic research with considerable mistrust. For this reason, and to better understand the salience of community-based ethical, legal and…- behavioral /social science research tag
- Belief
- biotechnology
- blood chemistry
- Chinese American
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Grant Abstract
Community Engagement Core
NARRATIVE / PUBLIC HEALTH RELEVANCE STATEMENT The Community Engagement Core (CEC) will provide the oversight needed to ensure the U54 Pacific Center for Genome Research (PCGR)’s consideration of…- medically underserved
- Arterial Disorder
- Atherosclerosis Risk in Communities
- Community Health Education
- Framingham Heart Study
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Video
ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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News
Engaging Underrepresented Communities in Research
Attention to the unique inclusion and engagement needs of understudied populations is of critical importance to the advancement of genomic and precision medicine research, the elimination of health… -
Grant Abstract
Genome Diner: A strategy for community-researcher engagement in genome sciences
As evidenced by the endless reports of new discoveries in genetics and genomics over the past few decades, the public's views will substantially influence the uptake and use of these new…- Benefits and Risks
- Biological Sciences
- Biomedical Research
- Class
- clinical application
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Grant Abstract
Engaging Minority Communities in Genetics Policy Making
This renewal project, conducted by a consortium of three universities (University of Michigan, Michigan State University and Tuskegee University) will develop a process for engaging minority…- African American
- Attitude
- behavioral /social science research tag
- community
- Decision Making
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Video
ELSIcon2022 Panel: Out of the tower and onto the ground: engaging communities and scientists in emergent research priorities
ELSIcon2022 • Panel • May 27, 2022 Sara Ackerman, Julia Brown, Keolu Fox, Sandra Soo-Jin Lee ELSI scholars work under varied institutional support structures that make it difficult to…- Recruiting diverse participants to precision medicine research
- genomics research
- biobank
- equity and justice in genetics
- Panel