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Current Legal Challenges to Abortion: Implications for Prenatal Genetics
The ability to examine the health of the fetus has expanded dramatically in the last half century. Most of the time, the news is reassuring. However, prenatal screening and diagnosis detect genetic…- abortion
- prenatal genetics
- Down Syndrome
- Prenatal Diagnosis
- Prenatal screening
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Grant Abstract
Framework for Advances in Reprogenomics Ethics & Regulation (FAIRER)
PROJECT NARRATIVE Research in reproductive genomics is shifting, from diagnostics to interventions in the human genome, epigenome, and microbiome. But we lack ethical guidance about how to conduct…- Address
- Advocate
- Area
- Attention
- Bioethics Consultants
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Grant Abstract
Polygenic Embryo Screening: Towards Informed Decision-Making
PROJECT NARRATIVE Recent progress in complex trait genetics, coupled with the technical ability to generate accurate genome-wide genotypes from single-cell input, has made it possible to genetically…- Alleles
- Aneuploidy
- Assisted Reproductive Technology
- Attitude
- base
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Grant Abstract
Surfacing values in the economic evaluation of genomic sequencing for diagnosis of children with rare diseases
PROJECT NARRATIVE Though any single rare disease is by definition uncommon, together these diseases affect nearly 30 million individuals in the United States, two-thirds of whom are children, and…- Affect
- Anthropology
- base
- Bioethics
- career
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Game of Bones: Power, Ethics, and Emerging Technology in Paleogenomics Research
The field of paleogenomics is exploding. More ancient genomes were sequenced in 2019 than in all of history. According to The Economist, in 2018, oil was the most traded global commodity. However, in…- paleogenomics
- ancient DNA
- emerging technology
- Indigenous Peoples
- archaeology
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Realizing the Self-Determination Goals of Indigenous People in Genetics Research
Self-determination and tribal sovereignty are core concepts in the lives and histories of Indigenous Peoples. Within the United States, the peoples of the American Indian and Alaska Native tribes are…- Indigenous Peoples
- Genetics Research
- data sovereignty
- Indigenous Communities
- Community Engagement
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Empirical Evaluation of Arts-Based Informational Aids for ELSI Issues in the Clinic and Beyond
The rapidly changing science of clinical genetics and the complexity of its associated ethical, legal, and social (ELSI) issues call for novel approaches to information delivery and education of…- Genetics education
- popular culture
- science education
- Arts
- Informational aids
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Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease
Scientific and technological advances in the field of genomics have the potential to enable targeted clinical and public health measures to manage infectious disease outbreaks. The convergence of the…- genomics and infectious disease
- Covid-19
- ethical conduct of phylogenetic studies
- host genome testing
- data justice
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Race, Genetics, and Genetics Education
The completion of the Human Genome Project in 2003 opened up the floodgates of genetic data, ushering in rapid technological and scientific change. Today, the decreasing costs of genome sequencing…- race and genetics
- genetic education
- Racial essentialism
- Prejudice
- Racial conceptualization
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Grant Abstract
Organizational and Cultural Dynamics in Genomics Companies: Industry Engagement in Navigating Social and Ethical Issues
This Pathway to Independence Award (K99/R00) investigates and leverages perspectives from members of the health-related private sector genomics industry, to develop guidance for improving approaches…- Address
- Agreement
- American
- Area
- Attention