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2023 NIH Data Sharing and Management Policy Guidance - Stanford University School of Medicine
This collection of resources, which includes a recorded meeting, pre-award administrator guidance, brief descriptions of the NIH 2023 DMS policy, and compliance guidance, was compiled by the Research…- 2023 NIH Data Management and Sharing Policy
- data sharing
- National Institutes of Health (NIH)
- Stanford University
- compliance
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Additional Resource
6 Things You Need to Know About the New NIH Data Management and Sharing Policy
This PDF download created by the Stanford University Office of Research Data Governance and Privacy outlines the core elements of the policy, a Data Management Plan, allowable costs, etc.- 2023 NIH Data Management and Sharing Policy
- data sharing
- National Institutes of Health (NIH)
- Stanford University
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Additional Resource
NIH Website - Writing a Data Management and Sharing Plan
This NIH website details the Data Sharing and Management Plan format, discusses each element of the plan, and provides 4 sample plans.- 2023 NIH Data Management and Sharing Policy
- data sharing
- National Institutes of Health (NIH)
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Additional Resource
Understanding the New NIH Data Management and Sharing (DMS) Policy Webinar
This NIH webinar describes the applicability of the 2023 DMS policy, discusses data sharing considerations, and describes how to prepare a Data Management and Sharing Plan.- 2023 NIH Data Management and Sharing Policy
- data sharing
- webinar
- National Institutes of Health (NIH)
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Additional Resource
Understanding the New NIH Data Management and Sharing (DMS) Policy Slide Deck
This slide deck, which defines scientific data, lists allowable justifications for limiting data sharing, reviews elements of a DMS Plan, and covers other topics, was presented in Part 1 of the…- 2023 NIH Data Management and Sharing Policy
- data sharing
- National Institutes of Health (NIH)
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Additional Resource
NIH Data Management and Sharing FAQs
This NIH website provides answers to frequently asked questions about the 2023 DMS policy such as those about sharing qualitative data, how noncompliance will be handled, protection of research…- 2023 NIH Data Management and Sharing Policy
- data sharing
- qualitative data
- compliance
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Additional Resource
Diving Deeper into the new NIH Data Management and Sharing Policy Webinar
This NIH webinar provides guidance on privacy protections for human subjects and considers the interaction of the 2023 DMS policy with the NIH Genomic Data Sharing Policy- Genomic Data Sharing Policy
- 2023 NIH Data Management and Sharing Policy
- data sharing
- National Institutes of Health (NIH)
- webinar
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Collection
Human Gene Editing and the Ethics of Enhancement
Over the past decade, a new generation of precise and efficient gene editing techniques has brought new urgency and attention to the discussion of the ethics of human enhancement. In 2015, gene…- Genetic Enhancement
- human genome editing governance
- Eugenics
- Health Equity
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Privacy, Security, and Nondiscrimination Best Practices for Direct-to-Consumer (DTC) Genetic Testing Companies
The completion of the Human Genome Project opened new doors for business enterprise. One such activity is direct-to-consumer (DTC) genetic testing, or genetic testing offered on a service-driven…- data privacy
- direct-to-consumer genetic testing
- GINA
- genetic discrimination
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Collection
Genetics Toolkit: Preventing Misuse of Genetic Science
The misuse and distortion of genetic science by white supremacists during the 20th century made genetic essentialism, the belief that genes can accurately predict complex behaviors and traits, a…- genetic essentialism
- Behavioral Genetics
- Scientists’ responsibility