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Genomics <em>of</em> Education <em>in</em> Education: ELSI Concerns about Genomic Prediction in Educational Settings
Polygenic scores (PGS) for educational traits and outcomes (e.g., math ability, reading ability, and educational attainment) are currently available to the public via direct-to-consumer genetic…- Polygenic scores
- precision education
- learning disabilities
- Pygmalion effect
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Human Gene Editing and the Ethics of Enhancement
Over the past decade, a new generation of precise and efficient gene editing techniques has brought new urgency and attention to the discussion of the ethics of human enhancement. In 2015, gene…- Genetic Enhancement
- human genome editing governance
- Eugenics
- Health Equity
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Privacy, Security, and Nondiscrimination Best Practices for Direct-to-Consumer (DTC) Genetic Testing Companies
The completion of the Human Genome Project opened new doors for business enterprise. One such activity is direct-to-consumer (DTC) genetic testing, or genetic testing offered on a service-driven…- data privacy
- direct-to-consumer genetic testing
- GINA
- genetic discrimination
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Genetics Toolkit: Preventing Misuse of Genetic Science
The misuse and distortion of genetic science by white supremacists during the 20th century made genetic essentialism, the belief that genes can accurately predict complex behaviors and traits, a…- genetic essentialism
- Behavioral Genetics
- Scientists’ responsibility
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Biocolonialism and Other “Western”-Centered Bioethical Failures Onto Indigenous Peoples
There are complex, historical reasons why global Indigenous peoples have largely not engaged in genetics and genomics research. For example, if we look to the 1990s and early 2000s, global Indigenous…- Indigenous
- genetic data
- genetic ancestry
- decolonization
- Indigenous data
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Ethical Issues Related to Research Uses of Residual Dried Bloodspots from Newborn Screening
Newborn screening for metabolic and genetic disease is arguably one of the greatest public health interventions—notwithstanding some ethical challenges and opportunities for improvement—because it…- residual specimen
- Newborn screening
- genetic disease
- public attitudes
- Consent
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Abortion and the Genetic Counselor: The Impact of Restrictive Legislation on Genetic Counseling Practice
The first class of genetic counselors graduated with an M.A. from the Sarah Lawrence College in 1971; less than two years later, the Supreme Court decision in Roe v. Wade legalized abortion in all…- genetic counselor
- genetic counseling
- abortion
- prenatal genetic testing
- legislation
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Addressing Algorithmic Unfairness in Healthcare Artificial Intelligence
Artificial intelligence (AI) healthcare technology can solve our most complex and intransigent health issues. It has the potential to enhance healthcare quality, improve access, reduce cost, and…- Artificial intelligence
- Data Set
- Data Collection
- Big Data
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Ethical Challenges in Obtaining Informed Consent for Genetic/Genomic Research
Obtaining informed consent (IC) for genetic/genomic research is complicated because most of the ethical issues associated with genetic research are considerations to be disclosed by researchers and…- Informed Consent
- Genetic Research
- research oversight
- Broad Consent
- Communication
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Ethical and Legal Challenges Posed by the Implementation of AI Applications in the Healthcare Setting
Healthcare institutions are implementing artificial intelligence (AI) at a rapid pace. The hope is that AI will improve the quality of care and reduce costs in the long run. However, the deployment…- Artificial intelligence
- Healthcare
- health disparities
- Regulation
- FDA