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Grant Abstract
Testing and Counseling for Cystic Fibrosis Mutations
This project will evaluate CF carrier screening during pregnancy as perceived by the patient, partner, and provider and assess the impact on health costs through analysis of cost-effectiveness. The… -
Grant Abstract
Pathways to Genetic Screening: Patient Knowledge - Patient Practices
The purpose of this project is to illuminate the processes by which genetic screening and genetic concepts of health and illness penetrate two contrasting communities and become integrated into the… -
Grant Abstract
2nd Annual Conference on Computers, Freedom, and Privacy
The rush of computers into our workplaces, homes, and institutions is drastically altering how we work and live, how we buy and sell, and with whom we communicate. Computers are obliterating… -
Grant Abstract
National Study Conference on Genetics, Religion, and Ethics
This project will assemble persons of diverse religious commitments to study the religious and ethical implications of genome research. Four regional inter-disciplinary study groups will produce… -
Grant Abstract
Impact of HGP Derived Technology on Genetic Testing, Screening and Counseling: Cultural, Ethical, and Legal Issues
This project investigates the area of newborn genetic screening programs and policies governing state sponsorship of genetic screening. Legal aspects of confidentiality and informed consent will be… -
Grant Abstract
Visions for a Sustainable World: Science, Technology, and Social Responsibility
Student Pugwash, an international organization for undergraduate science students interested in science and society interactions, developed and implemented a working group within the 7th biennial… -
Grant Abstract
Genetics, Ethics, and Choice: A Qualitative Study
This study will explore the ethical choices of a small group of genetic counselors and physicians. Drawing on previous research and the questions and case material from a larger study of clinicians… -
Grant Abstract
An Educational Ethics Casebook for Genetic Counseling
The goal of this project is the development of a casebook and compilation of related educational resources covering ethical issues encountered in the practice of genetic counseling. It will present… -
Grant Abstract
Legal Issues in Genetic Discrimination
The purpose of this proposal is to analyze legal issues related to instances of genetic discrimination. The central hypothesis is that the existing legal framework may not remedy a number of reported… -
Grant Abstract
The Human Genome Initiative and Limits of Ethical Theory
This project will investigate many general and far-reaching moral issues raised by the Human Genome Initiative, from distributive and intergenerational justice to concepts of personal identity,…